This is going to be blunt and a little depressing. For me, it's all about reducing expectations and accepting more disappointments. Not as many doors will be

This is going to be blunt and a little depressing. For me, it's all about reducing expectations and accepting more disappointments. Not as many doors will be open to me. I tend to think less about what I can do and more about what I will be able to maintain later on as my situation deteriorates. Just as as most adolescents accept that they won't be astronauts or Presidents, I have had to accept that far more mundane things will simply be out of reach. As a life, it is smaller than most, not quite as brightly colored as that of a you who would have been healthy. I try to be prepared to do things when I have that energy available to me, but I make sure that those things are important, because I cannot fritter away the few times I am capable. You also have to develop some patience: patience with explaining things to strangers who may or may not be well-meaning with their questions, patience with friends who do not "get" that you won't be able to make it that night, and finally patience with yourself for not meeting your own expectations. This all sounds very Zen when I put it that way but I am keeping much of the sadness and bitterness out of my description.