3 ms·

I've had MS for probably about 5 years now. Thankfully my case is relatively mild, but it can still be both disruptive and stressful at times (especially during

I've had MS for probably about 5 years now. Thankfully my case is relatively mild, but it can still be both disruptive and stressful at times (especially during my first few attacks, prior to formal diagnosis). I spent a lot of time obsessing over it and the rest of my life was suffering as a result (it really exacerbated my trouble sleeping into a serious problem). In order to combat this I mostly tried to spend my time either being productive or doing whatever recreational activities my condition would allow. Over time, as I started to eliminate worries (diagnosis, medication, learning what would cause flair-ups and just generally coming to a better understanding of it), it's become more or less routine/normal. Can't say the same will apply to other people, but that's how it has played out for me so far. Best of luck and apologies that I can't give a more helpful answer.

DantesKite 6y ago
Thanks for the perspective. I appreciate it. And I wish you well.
csunbird 6y ago
Similarly, I have chronic leukemia for more than 5 years. It will never go away but it is manageable, to the extend where I can live my life just like a normal person and with life expectancy of 25 more years. The first year was hard, but I managed to live through it somehow. I deal with it by not dealing with it and forgetting about it, except when it is time for me to take my medication and the regular doctors visit every three months. It did change me over time, especially because I am in my late twenties right now and diagnosed when I was 24, I became a lot more reckless with my decisions (I used to be a control freak) and my illusion of healthy/successful/unstoppable self was shattered. I am not sure how I can explain more (sorry about that!), I just live by somehow and stopped worrying about it. I know that it is out there and probably will get me in the end (and probably the social security payments that I am making are just a waste :) ), but there is nothing I can do about it, except for taking my medication and visiting my doctor regularly.
toshk 6y ago
You probably know her, but in case you dont maybe Terry Wahls books are useful for you

DantesKite 6y ago

Thanks for the perspective. I appreciate it. And I wish you well.

csunbird 6y ago

Similarly, I have chronic leukemia for more than 5 years. It will never go away but it is manageable, to the extend where I can live my life just like a normal person and with life expectancy of 25 more years. The first year was hard, but I managed to live through it somehow. I deal with it by not dealing with it and forgetting about it, except when it is time for me to take my medication and the regular doctors visit every three months. It did change me over time, especially because I am in my late twenties right now and diagnosed when I was 24, I became a lot more reckless with my decisions (I used to be a control freak) and my illusion of healthy/successful/unstoppable self was shattered. I am not sure how I can explain more (sorry about that!), I just live by somehow and stopped worrying about it. I know that it is out there and probably will get me in the end (and probably the social security payments that I am making are just a waste :) ), but there is nothing I can do about it, except for taking my medication and visiting my doctor regularly.

toshk 6y ago

You probably know her, but in case you dont maybe Terry Wahls books are useful for you