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Having a chronic and/or complex health issue is a good way to find out just how many doctors don't deserve to be practicing medicine. I've had doctors tell me t
by tpmoney 6y ago
Having a chronic and/or complex health issue is a good way to find out just how many doctors don't deserve to be practicing medicine. I've had doctors tell me they don't treat conditions that their own practice's website says they treat. I've had doctors read letters and notes from my other physicians and claim the letter said the opposite of what they did (and then when called out on this discrepancy, refuse to acknowledge it and tell me I can either accept what they're doing or leave. I left.). I've had doctors prescribe medications, and then when when I encountered the very same side effects listed in the "stop taking this right away and call your doctor" was told I can't be experiencing that side effect because "it never really happens". I've had doctors tell me to do one thing, and then when a different doctor called them to ask about what they said, claim they never said that at all (despite having the written prescription for what they said).
I've had phenomenal doctors too, ones who a lack of coverage for is reason enough for me to turn down a job or to choose a more expensive insurance plan. But finding those "golden" doctors in the sea of average and below average doctors has been a nearly decade long process. And it's been really easy to see how people with complex medical issues can get suckered by snake oil salesmen and grifters. When you spend so much time fighting with the medical system and getting no relief, finding someone who will pretend to give a damn is a form of relief in and of itself. And I have never once in all the times I've filed a complaint with a hospital, or office or even state medical boards gotten any response other than "We've investigated ourselves and determined we did nothing wrong".
It's a definite problem and there really needs to be a better process. The state medical board claime they don't dispute physician diagnosis, just evaluate the care of the provider within the scope of that diagnosis. So if your doctor says during your 10th visit for severe stomach pains in 3 weeks that you have gas and gives you Gas-X, and it turns out that you had appendicitis, the medical board doesn't intervene, because Gas-X was the appropriate treatment for the diagnosis. And the hospital patient advocate/experience folks aren't in the business of pissing off the doctors they work with every day. And too often doctors are unwilling to criticize the work or actions of another doctor, even when blatantly wrong. There badly needs to be an independent patient advocacy and dispute resolution that is aligned with the interests of the patient, not the doctors.
- tdrp 6y agoFor the same exact issue, you can go to a cardio and get prescribed some cardio-related medication, go to a neuro and get prescribed neuro-related medication, etc. To a hammer everything is a nail. I was put on antibiotics, beta blockers, topamax and a couple of more serious medication for what was ultimately just a vitamin D deficiency that they had been too narrow-sighted to try catching. I lost a lot of respect for the medical profession at that time.
- sgtnoodle 6y agoI've been working with a cardiologist, a rheumatologist, and a pulmonologist all within UCSF, and as far as I can tell they're doing a great job coordinating with each other to treat my malady. For example, they've avoided ordering redundant scans in order to minimize my radiation exposure. I think I'm pretty lucky to have access to UCSF, and doubly so since I arbitrarily switched to a PPO insurance plan this year before I knew I had any problems. I'm feeling especially appreciative because my failed atrioventricular nerves started working again today! Apparently they've been giving me the right drugs. While I'm reflecting on how lucky I am to live somewhere with great health care, here's a shameless plug for the company I work for, Zipline International. We're building a scalable platform for delivering life saving medical supplies to hard to reach places that wouldn't otherwise have access, based on really cool/boring because they're so reliable UAVs. We're definitely hiring on the embedded team, and I'm sure on all the other software teams as well. Our internal metrics are getting pretty mind blowing to follow, in terms of deliveries per day/cumulative distance flown per day/literal lives saved per day. I guarantee there's plenty of fun projects to work on!