2 ms·

Unfortunately, men are so much more likely to wind up with a progressive form of the disease. I'm really sorry to hear that it has 'leveled up' like this. This

Unfortunately, men are so much more likely to wind up with a progressive form of the disease. I'm really sorry to hear that it has 'leveled up' like this. This is one of those fears in the back of my head, though with women it becomes more likely after menopause. I truly hope it doesn't get you down too much anymore and that you are able to find some enjoyment in life despite all this. I am lucky, mostly: I'm 42 and have a bit of fingertip numbness and get some electric shocks sometimes. I wasn't diagnosed until around 2 years ago, though I had ON in my 20's. It is somewhat odd, though: My neuro first tried to put my fears to rest, assuring me that it wasn't the same disease as it was even 5 years ago due to the drugs available. I wish more of them worked on progressive forms as well, and I'm still hoping for some miracle - it doesn't have to be a cure, per se, but something that at least heals more often.

neltnerb 6y ago
My doctor may have been blunt with me because I grew up with family that has it. I've known what it was since I was 5. But my doctor says the same lately, not even dimethyl fumerate was out there yet in 2012 and the best drugs merely reduced the probability of an attack by a little under 50%. Several current drugs I think are more like 70% and way gentler to take. Still far from perfect though, I've gotten worse despite three very different medications. But with MS we're kind of just playing the odds, and that 70% is aggregated across all underlying causes. Mine is almost certainly genetic. Maybe one drug works great for genetic causes but badly for some say chemical exposure that triggered it. But no one can tell that's the case. That seems like something that could be improved for sure, personalized medicine. But I also don't find it hard to believe that we'll be regenerating nerves in ten years, that seems entirely reasonable given how long we've been studying them and the tools now available.

neltnerb 6y ago

My doctor may have been blunt with me because I grew up with family that has it. I've known what it was since I was 5. But my doctor says the same lately, not even dimethyl fumerate was out there yet in 2012 and the best drugs merely reduced the probability of an attack by a little under 50%. Several current drugs I think are more like 70% and way gentler to take. Still far from perfect though, I've gotten worse despite three very different medications. But with MS we're kind of just playing the odds, and that 70% is aggregated across all underlying causes. Mine is almost certainly genetic. Maybe one drug works great for genetic causes but badly for some say chemical exposure that triggered it. But no one can tell that's the case. That seems like something that could be improved for sure, personalized medicine. But I also don't find it hard to believe that we'll be regenerating nerves in ten years, that seems entirely reasonable given how long we've been studying them and the tools now available.