4 ms·
I made something like this for my mom who had large B-cell lymphoma, amongst other disheartening diseases. At one point she was on 17 different medications — an
by joshmn 6y ago
I made something like this for my mom who had large B-cell lymphoma, amongst other disheartening diseases. At one point she was on 17 different medications — and no, you don't need to get me started on that.
I wanted to know that she was not only taking her medication but also the correct dosage, when she was opening the bottles, and when she was taking them. A minibar but for meds, basically. I did this not because I'm a control freak but because managing her care was difficult. I also wanted to be able to coordinate the issues she raised with her doctors with more precision than "well she took x last week." I also did it because I was irritated with how frequently she was taking her oxy. Yeah, I guess I was a little of a control freak. :)
From the day she was diagnosed up until the day before she died, I'd like to think being a hacker really benefited her. Two days after her diagnosis, between bouts of cries, I scraped for every article I could find about her disease, parsed out the authors, ran their names through a bunch of residential proxies with headless Chrome, searching for their name and if they were involved in any clinical trials ("+trials"). If they were, I sent them a blanket email asking for a second opinion.
Ultimately, she received very precise care from a resource that wasn't originally available. I like to think benefited her for the long haul, but I suppose we'll never know.
My mom doesn't have cancer anymore. She passed away late October of last year. I named a Ruby framework after her, as writing it was my mental vacation from being her full-time caretaker for the last 75 days of her life.
On second thought, she really hated when I would talk to strangers on the internet. Oh well!
ps. hi mom!