Thierry, Thanks for your kind post. I am sorry that your mother has SLA. Keep hope, not all ALS cases are similar, some are less frightening than the textbook

Thierry, Thanks for your kind post. I am sorry that your mother has SLA. Keep hope, not all ALS cases are similar, some are less frightening than the textbook ALS. In France as in other countries there are ALS centers or ALS clinics. I hope that your mother's neurologist discussed about exams at the most convenient SLA center [0 -1]. Unfortunately and as recounted by "Agence Régional de Santé", patients' outcome is better in "CHU" than in other French hospitals. At the moment there are two drugs, Rilutek and Edaravone. Make sure your mother got also Edaravone, it was not prescribed to my uncle. And as Herodotus38 told in another thread there are encouraging results from a clinical trial about AMX0035, a combo of two common drugs. In a few months we will have the results about Arimoclomol from which I expect really good news, and also about Nurown, a new kind of therapy. All those drugs do not heal but at least they buy time. Jean-Pierre [0] https://portail-sla.fr/liste-centres-labellises/ https://portail-sla.fr/liste-centres-labellises/ [1] https://www.encals.eu/centres/ https://www.encals.eu/centres/