3 ms·
They are not anonymized. We may not always give out things like contact information or fields specifically for joining to other datasets, but we assume the pro
by vharuck 6y ago
They are not anonymized. We may not always give out things like contact information or fields specifically for joining to other datasets, but we assume the provided data is enough to reasonably identify patients. Age, city, date of diagnosis, race (which can be specific nations for Asian and Pacific Islanders), and the fact they have cancer can be very good clues. If the requestor knows somebody with cancer, it wouldn't be hard to learn other things about them by looking up their record.