3 ms·

Yes, how do we get beyond that sticking point? There are so many things that need to be loosened up IMO: - Be able to buy contact lenses without a prescription

Yes, how do we get beyond that sticking point? There are so many things that need to be loosened up IMO: - Be able to buy contact lenses without a prescription - Be able to buy CPAPs without a prescription - Be able to buy portable ultrasound without a prescription (https://www.butterflynetwork.com/ https://www.butterflynetwork.com/) - Be able to buy an EKG (yay, this is available: https://store.alivecor.com/ https://store.alivecor.com/) - Be able to buy a Continuous Glucose Monitor

DoreenMichele 6y ago
We need some Best Practices. When I was homeless and on Metafilter, there was a doctor running around cramming her opinions down everyone's throats and everyone let her get away with it because of the way Metafilter works and one of her hobbies was harassing me, a homeless woman, cuz Reasons. (Edit: I was homeless at the time. I'm not anymore, though I'm still dirt poor and yadda.) And when I posted the best answer one day using internet best practices of backing it up with citations, this did absolutely nothing to get my reputation out of the toilet, even though it probably saved some guy's life. But I remained chopped liver and I was eventually banned from Metafilter for reasons I think are really not how you run a healthy forum. Metafilter does not have the man power to vet who there is a doctor or not and if they start vetting people, then you start getting into this weird territory of more or less pseudo practicing medicine on the internet. She was posting under an anonymous handle but also wanting to lean on "I need to win every medical question because I am a doctor with a huge ego and personal issues." It was just all kinds of messed up and the mods were not policing it. If you want to discuss medical stuff on the internet, you can't lean on "I'm a doctor" and also be anonymous. Anyone who is anonymous can claim to be a doctor and we can't verify that. So if you are a doctor, you should have no problem backing up your claims with citations. And if you aren't a doctor, but can back up your statements with citations, then no one should be harassing you and claiming you are "practicing medicine without a license" for leaving comments in a discussion on the internet. It's different if the doctor is putting their name and face to it and staking their professional reputation on it, so this is absolutely not some kind of attack of this blog posts. But the internet does a lot of weird social stuff where we haven't yet figured out that the internet works different from meat space and it doesn't work to borrow rubrics from meat space and so forth. It needs its own rubrics. Another thing I would like to see is that we should be allowed to err on the side of self determination for purposes of doing things to our own bodies without having to justify it. A lot of people with serious conditions are dying, doctors cannot fix them and then the medical system gatekeeps them away from trying experimental stuff and if you are part of such a community and you have such a condition and you are late stage, it's incredibly horrifying and makes zero logical sense. So those are two things I have thought a lot about. I don't know what else to suggest. I'm too busy just trying to muddle through my pathetic life in the face of my condition and the poverty it helps foster and yadda.

DoreenMichele 6y ago

We need some Best Practices. When I was homeless and on Metafilter, there was a doctor running around cramming her opinions down everyone's throats and everyone let her get away with it because of the way Metafilter works and one of her hobbies was harassing me, a homeless woman, cuz Reasons. (Edit: I was homeless at the time. I'm not anymore, though I'm still dirt poor and yadda.) And when I posted the best answer one day using internet best practices of backing it up with citations, this did absolutely nothing to get my reputation out of the toilet, even though it probably saved some guy's life. But I remained chopped liver and I was eventually banned from Metafilter for reasons I think are really not how you run a healthy forum. Metafilter does not have the man power to vet who there is a doctor or not and if they start vetting people, then you start getting into this weird territory of more or less pseudo practicing medicine on the internet. She was posting under an anonymous handle but also wanting to lean on "I need to win every medical question because I am a doctor with a huge ego and personal issues." It was just all kinds of messed up and the mods were not policing it. If you want to discuss medical stuff on the internet, you can't lean on "I'm a doctor" and also be anonymous. Anyone who is anonymous can claim to be a doctor and we can't verify that. So if you are a doctor, you should have no problem backing up your claims with citations. And if you aren't a doctor, but can back up your statements with citations, then no one should be harassing you and claiming you are "practicing medicine without a license" for leaving comments in a discussion on the internet. It's different if the doctor is putting their name and face to it and staking their professional reputation on it, so this is absolutely not some kind of attack of this blog posts. But the internet does a lot of weird social stuff where we haven't yet figured out that the internet works different from meat space and it doesn't work to borrow rubrics from meat space and so forth. It needs its own rubrics. Another thing I would like to see is that we should be allowed to err on the side of self determination for purposes of doing things to our own bodies without having to justify it. A lot of people with serious conditions are dying, doctors cannot fix them and then the medical system gatekeeps them away from trying experimental stuff and if you are part of such a community and you have such a condition and you are late stage, it's incredibly horrifying and makes zero logical sense. So those are two things I have thought a lot about. I don't know what else to suggest. I'm too busy just trying to muddle through my pathetic life in the face of my condition and the poverty it helps foster and yadda.