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Your data, your rules. I put my 23andme raw data in github (https://github.com/sbassi/MiGenomaSbassi https://github.com/sbassi/MiGenomaSbassi) for the world to
by sbassi 6y ago
Your data, your rules.
I put my 23andme raw data in github (https://github.com/sbassi/MiGenomaSbassi https://github.com/sbassi/MiGenomaSbassi) for the world to see and use without asking anybody in my family.
- berkes 6y agoI strongly disagree. I consider it comparable to something like financial administration. In which an "expense" or "exchange" has two sides. Me, paying you, you receiving the money. It is not up to me to decide to just release such data. Because it encodes other people's data too. If I were to release my financial records because "it's my data", i'd be exposing a lot of people, organisations and companies who I had interaction with.
- yreg 6y agoBut it is up to me to decide to release my financial records. All the parties I've dealt with have to expect the possibility (unless there is some signed agreement that prevents disclosing them). With DNA I'm not so sure.
- berkes 6y agoI'm pretty sure that if <insert ecommerce platform here> were to leak all their financial transactions, that is considered a large data-breach and would be considered a privacy infringement. I am aware that "an ecommerce platform" is something else than "your personal finance", but the principle is the same: X shouldn't release other people's financial transactions just because those were done with X.
- yummypaint 6y agoThe federal Genetic Information Nondiscrimination Act does prohibit insurers from asking for or using your genetic information to make decisions about whether to sell you health insurance or how much to charge you. But those privacy protections don't apply to long-term-care policies, life insurance or disability insurance. https://www.npr.org/sections/health-shots/2018/08/07/636026264/genetic-tests-can-hurt-your-chances-of-getting-some-types-of-insurance https://www.npr.org/sections/health-shots/2018/08/07/6360262...
- mellosouls 6y agoThe point is, it's not just your data. It's shared with other people who may not want it being publicised to all and sundry.
- isbvhodnvemrwvn 6y agoThat's ridiculous. Should I not use my surname because I identify my parents, my brothers and some of my cousins? I think bodily autonomy applies here.
- mellosouls 6y agoYou are giving far more away with DNA information; it's not remotely the same. The point is, at the very least it's a grey area, so to dismiss the counter points so airily as you have done on such a serious subject indicates - at best - a lack of reflection and respect for the rights of others.