3 ms·
Since they classed the first known outbreak of ME as mass hysteria its been constant gaslighting for sufferers for 70 odd years. Even now this article is writte
by PaulKeeble 6y ago
Since they classed the first known outbreak of ME as mass hysteria its been constant gaslighting for sufferers for 70 odd years. Even now this article is written as if ME/CFS doesn't exist, as if doctors in the UK are completely baffled, but we know what this is and it will have the same hallmark Post Exertional Malaise but its not even mentioned in the article. The NHS doesn't recognise the international definition of the disease and continues to harm patients that show up with it every day. The Chinese after SARS didn't have issues calling it ME/CFS, around 10% of the SARs sufferers still suffer with ME/CFS to this day, they had papers calling it what it was very early on. The NHS however is going with "no clue".
We do know a lot more than we knew 2 years ago. We know the condition swells the brain in the central and front regions and that explains the memory problems, headaches and coordination issues. We know that sufferers have virus RNA in their body and in their brains, so its possible its just an ongoing infection but it also appears to be partially replicated in cells. We know that patients cells produce down to about 25% of the energy that a normal persons cells do in their mitochondria and it is at least partially to do with the Calcium ion channel being turned off with a gene switch. A sufferers plasma will shut down someone else's cell too so its probably a signal of some description in the immune system soup. What we don't know is if any of this is the root cause of the condition and there is frighteningly small amounts of research being done for a disease that can be as debilitating as MS.
We know a lot about how its not Psychological now and research is getting funded at last. But its been 70 years of "its all in your head", nothing about this condition paints doctors and researchers at all in a good light.