4 ms·

Hopefully this helps them find a cure/treatment. Most people don’t have complications from this virus, I am one of the few that did. Now, every so often when I

Hopefully this helps them find a cure/treatment. Most people don’t have complications from this virus, I am one of the few that did. Now, every so often when I get the flu or a cold. Or in general my immune system gets weaker, lack of sleep, etc. I get another round of mononucleosis. My throat swells shut, I get ridiculous fatigue, and I get swelling and soreness pretty much all over. I’m then doomed to a week of bed rest and water+pudding+soap. I fear that these complications will arise and make other illnesses worse as they do with the flu and colds. I really fear this combine with covid will do me in. I guess we’ll see.

zerubeus 6y ago
The virus is also the direct cause of many Cancers of the immune system, it causes more than 500k cancer worldwide most of them Lymphomas
- digi59404 6y ago
  How poetic. My fiancée has chronic neutrophilic leukemia, or is suspected to have I should say. As there’s no testing or treatment, you can only see the symptoms and body’s reaction to the illness and conclude. We see a specialist every 6 months for the rest of her life to monitor her blood and ensure it doesn’t progress. For the rest of her life. Here’s to hoping I go out in a blaze of glory as opposed to cancer, caused by this virus, that was given to me by my cheating ex.
  - zerubeus 6y ago
    Very tough, but just so you don't overthink this too much, we all end up catching this Virus, in the United States, about half of all five-year-old children and about 90% of adults have evidence of previous infection, still there's only 200,000 cancer cases per year are thought to be attributable to EBV
tomcam 6y ago
Sounds dreadful. My best to you. What is the soap for?
- tehlike 6y ago
  Likely he meant soup.
- digi59404 6y ago
  Good old iPhone auto correct. I did in fact mean soup.
ijidak 6y ago
Do you get tonsoliths? I had a similar pattern as you. But now, cleaning tonsoliths from my throat regularly helps reduce recurrence of infection.
Arech 6y ago
Wow, the simptoms sounds astonishingly familiar to me. I eventually was able to find a doctor (immunologist) who was able to help me to throw this thing into a strong remission. The key part was to make a thing called "immunological profile" (--"-- analysis?).. I'm not a native English speaker and I may translate it wrong - the idea is to measure the distribution of your own's body immune cells in a blood - all of these NK-cells, T-cells, B-cells &etc. There were some strong deviations from a norm in my blood and the Doctor was able to fix it. Only then I was able to forgot about all that EBV-related hell you've described... So, try to find a good immunologist in your country, who specializes on EBV, he/she might be able to help. PS: There's an antiviral drug called Isoprinosine - before I found the Immunologist, I used that drug to quickly suppress the virus when it bit me too heavy. Just 1 or 2 pills in 1 or 2 days was enough to suppress it for a few weeks/may be months, BUT (and this is very important!) that drug is quite unfriendly to kidneys, esp. when taken regularly and/or in high doses. So if you can refrain from using it - don't use it. The very bad and sad thing about EBV - many doctors absolutely DON'T realize, how №%;%№ evil that thing is. You're feeling yourself just like a zombie, you can't have a normal sleep and suffering from constant fatigue, but all they say is "oh, just have a rest, it's just a flu, you'll be ok in a week, then visit your psychiatrist, he'll help you". Stupid ignorant idiots!... So, have patience and look for a normal doctor, probably, you may fix it even now! Wishing you and everyone who suffers from EBV to get well!

zerubeus 6y ago

The virus is also the direct cause of many Cancers of the immune system, it causes more than 500k cancer worldwide most of them Lymphomas

digi59404 6y ago
How poetic. My fiancée has chronic neutrophilic leukemia, or is suspected to have I should say. As there’s no testing or treatment, you can only see the symptoms and body’s reaction to the illness and conclude. We see a specialist every 6 months for the rest of her life to monitor her blood and ensure it doesn’t progress. For the rest of her life. Here’s to hoping I go out in a blaze of glory as opposed to cancer, caused by this virus, that was given to me by my cheating ex.
- zerubeus 6y ago
  Very tough, but just so you don't overthink this too much, we all end up catching this Virus, in the United States, about half of all five-year-old children and about 90% of adults have evidence of previous infection, still there's only 200,000 cancer cases per year are thought to be attributable to EBV

tomcam 6y ago

Sounds dreadful. My best to you. What is the soap for?

tehlike 6y ago
Likely he meant soup.
digi59404 6y ago
Good old iPhone auto correct. I did in fact mean soup.

ijidak 6y ago

Do you get tonsoliths? I had a similar pattern as you. But now, cleaning tonsoliths from my throat regularly helps reduce recurrence of infection.

Arech 6y ago

Wow, the simptoms sounds astonishingly familiar to me. I eventually was able to find a doctor (immunologist) who was able to help me to throw this thing into a strong remission. The key part was to make a thing called "immunological profile" (--"-- analysis?).. I'm not a native English speaker and I may translate it wrong - the idea is to measure the distribution of your own's body immune cells in a blood - all of these NK-cells, T-cells, B-cells &etc. There were some strong deviations from a norm in my blood and the Doctor was able to fix it. Only then I was able to forgot about all that EBV-related hell you've described... So, try to find a good immunologist in your country, who specializes on EBV, he/she might be able to help. PS: There's an antiviral drug called Isoprinosine - before I found the Immunologist, I used that drug to quickly suppress the virus when it bit me too heavy. Just 1 or 2 pills in 1 or 2 days was enough to suppress it for a few weeks/may be months, BUT (and this is very important!) that drug is quite unfriendly to kidneys, esp. when taken regularly and/or in high doses. So if you can refrain from using it - don't use it. The very bad and sad thing about EBV - many doctors absolutely DON'T realize, how №%;%№ evil that thing is. You're feeling yourself just like a zombie, you can't have a normal sleep and suffering from constant fatigue, but all they say is "oh, just have a rest, it's just a flu, you'll be ok in a week, then visit your psychiatrist, he'll help you". Stupid ignorant idiots!... So, have patience and look for a normal doctor, probably, you may fix it even now! Wishing you and everyone who suffers from EBV to get well!