4 ms·

Note that similar effects have been observed with other critical illnesses: https://www.nejm.org/doi/full/10.1056/NEJMoa1301372 https://www.nejm.org/doi/full/10

Note that similar effects have been observed with other critical illnesses: https://www.nejm.org/doi/full/10.1056/NEJMoa1301372 https://www.nejm.org/doi/full/10.1056/NEJMoa1301372

deleted 6y ago
[deleted]
tomhoward 6y ago
Indeed, and as someone who is familiar with the condition often described as "we can't exactly work out what it is but I guess you could all it CFS/ME [1]", this is often linked to common viral infections including Epstein-Barr and cytomegalovirus. CFS/ME sufferers often exhibit some of the neurological symptoms mentioned in the article (though not the more extreme/terminal ones like stroke). Lyme disease sufferers also often exhibit these kinds of symptoms to some degree, which is why, in the absence of serology evidence, it can be difficult to distinguish from CFS/ME. [1] https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome
- avgDev 6y ago
  I just want to point out that in the US at least, infections are often treated with flouroquinolones and the side effects can result in fibro/cfs diagnosis. Symptoms can show up even at 12 months. I have met numerous people over the years, who were given cipro/levaquin just in case while they were waiting for blood test results and started having odd neurological symptoms lasting months or years. Later results turned out to be normal and no infection. The medical community has been failing most of these people and I am among them. Many report symptoms during their course and doctors rarely report the issue to the FDA. I have been to Mayo and other popular hospital systems and honestly sometimes I feel like there is a big conspiracy to protect the drug, it seems quite surreal. In Europe during EMA panel a few doctors spoke out and mentioned the issues their patients are dealing with. Some patients also described their symptoms: neurological issues, widespread muscle/tendon pain, insomnia. It sounds very similar to CFS/Fibro.

Note that similar effects have been observed with other critical illnesses: https://www.nejm.org/doi/full/10.1056/NEJMoa1301372 https://www.nejm.org/doi/full/10.1056/NEJMoa1301372

deleted 6y ago

[deleted]

tomhoward 6y ago

Indeed, and as someone who is familiar with the condition often described as "we can't exactly work out what it is but I guess you could all it CFS/ME [1]", this is often linked to common viral infections including Epstein-Barr and cytomegalovirus. CFS/ME sufferers often exhibit some of the neurological symptoms mentioned in the article (though not the more extreme/terminal ones like stroke). Lyme disease sufferers also often exhibit these kinds of symptoms to some degree, which is why, in the absence of serology evidence, it can be difficult to distinguish from CFS/ME. [1] https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome

avgDev 6y ago
I just want to point out that in the US at least, infections are often treated with flouroquinolones and the side effects can result in fibro/cfs diagnosis. Symptoms can show up even at 12 months. I have met numerous people over the years, who were given cipro/levaquin just in case while they were waiting for blood test results and started having odd neurological symptoms lasting months or years. Later results turned out to be normal and no infection. The medical community has been failing most of these people and I am among them. Many report symptoms during their course and doctors rarely report the issue to the FDA. I have been to Mayo and other popular hospital systems and honestly sometimes I feel like there is a big conspiracy to protect the drug, it seems quite surreal. In Europe during EMA panel a few doctors spoke out and mentioned the issues their patients are dealing with. Some patients also described their symptoms: neurological issues, widespread muscle/tendon pain, insomnia. It sounds very similar to CFS/Fibro.