You are missing the point: I still need a lot of care, and the quality of it allows me not only to work, but to stay alive. I have at least 1 appointment per we

You are missing the point: I still need a lot of care, and the quality of it allows me not only to work, but to stay alive. I have at least 1 appointment per week for my medical care, if not a minimum of 2. Sometimes I can have 4 appointments per week. It is not just a matter of having to commute, however long that may be. In an emergency, where I am located matters, and living 2-3 hours outside a major metro area can easily hasten my death, with my medical issues. Rare diseases tend to be systematic, with limited treatments. They are also not easy to treat either. In my case in particular, I am technically more susceptible to having other rare conditions too. My rare diseases are immune-mediated. But, where I live absolutely matters. I also require a lot of healthcare contact, where living 2-3 hours outside of a city just does not work.