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Which type are you using? I was on CPD at home (perinatal dialysis), and that worked ok for me I the UK (spent just over 4k days on the list and passed on two c

Which type are you using? I was on CPD at home (perinatal dialysis), and that worked ok for me I the UK (spent just over 4k days on the list and passed on two calls, I went on eh list before I needed dialysis) I basically hooked up at 10 pm for a 8 hour cycle and was done by 6 am and out of the door at 7 to commute. I would have ben ok doing manual bags but I think having to do so exchanges at work sqicked some cowokers out.

pkaye 6y ago
I do PD also. 9 hours on cycler while sleeping but i also have to do a manual bag for 3-4 hours in evening. That means I kind of have to be back home by 7pm. I could have gone with a full day fill but I hate the full feeling for the whole day. So you were on the list for 4k days? That is like 10 years! Did you already have a transplant?
- walshemj 6y ago
  Ah no in the UK they now try put you on the list before you need to go on dialysis - I had managed long term decline for almost 20 years. I also passed on the first before I was on dialysis and passed on the second as it was a "problematic" donor - they where not sure if they where HIV +ve - the Doctors send line was "don't worry we have good drugs for HIV these days" I just did 2 10l bags in the evening and one filler to tide me over
  - pkaye 6y ago
    What was the criteria to by on the list in the UK? In the US, I was put on the list when I had a GFR of 20 but that lasted only 2 years till it progressed to dialysis which is considered when GFR falls below 15. My kidney failure is due to IgA Nephropathy so it progressed despite all my attempts.
    - walshemj 6y ago
      I went on dialysis when I hit about 20-25% but I had been on the list for 3 years or so before that. It maybe the NHS has different criteria for going on the list and it my depend on consultant and the individual - but I had been seeing the nephology team since 2000 ish

pkaye 6y ago

I do PD also. 9 hours on cycler while sleeping but i also have to do a manual bag for 3-4 hours in evening. That means I kind of have to be back home by 7pm. I could have gone with a full day fill but I hate the full feeling for the whole day. So you were on the list for 4k days? That is like 10 years! Did you already have a transplant?

walshemj 6y ago
Ah no in the UK they now try put you on the list before you need to go on dialysis - I had managed long term decline for almost 20 years. I also passed on the first before I was on dialysis and passed on the second as it was a "problematic" donor - they where not sure if they where HIV +ve - the Doctors send line was "don't worry we have good drugs for HIV these days" I just did 2 10l bags in the evening and one filler to tide me over
- pkaye 6y ago
  What was the criteria to by on the list in the UK? In the US, I was put on the list when I had a GFR of 20 but that lasted only 2 years till it progressed to dialysis which is considered when GFR falls below 15. My kidney failure is due to IgA Nephropathy so it progressed despite all my attempts.
  - walshemj 6y ago
    I went on dialysis when I hit about 20-25% but I had been on the list for 3 years or so before that. It maybe the NHS has different criteria for going on the list and it my depend on consultant and the individual - but I had been seeing the nephology team since 2000 ish