It is common to have a rare disease: 7-8% of the general population has some sort of a condition that is classifiable as a rare disease I personally have 2, bo

It is common to have a rare disease: 7-8% of the general population has some sort of a condition that is classifiable as a rare disease I personally have 2, both of which affect my peripheral nervous system. Getting diagnosed is basically like having a bomb dropped on you. Nothing can prepare you for it, and it takes a long time to heal from the news, if you ever do. The vast majority of rare diseases have no government health regulatory system approved treatment. I believe 95% do not. Treatment is often for symptom relief, and typically modification of the disease process itself is not possible. However, in some cases, drugs can be repurposed.