4 ms·
Doubt my comment will get to you with so many commenters and it's a bit off topic, but are you familiar with savesightnow.org? They are a patient advocacy group
by mattkrisiloff 6y ago
Doubt my comment will get to you with so many commenters and it's a bit off topic, but are you familiar with savesightnow.org? They are a patient advocacy group specifically for Usher's Syndrome working on finding a cure...good people involved in it.