3 ms·
If you have zero external support system and literally no money/income... it's an absolute shitshow, and that's about all I can tell you. Dr. Ian Carroll is ar
by s5300 7y ago
If you have zero external support system and literally no money/income... it's an absolute shitshow, and that's about all I can tell you.
Dr. Ian Carroll is arguably the best resource in the world. Starting here is probably a good choice.
https://profiles.stanford.edu/ian-carroll https://profiles.stanford.edu/ian-carroll
https://www.mdedge.com/neurology/migraineresourcecenter/article/132780/headache-migraine/when-suspect-csf-leak https://www.mdedge.com/neurology/migraineresourcecenter/arti...
https://youtu.be/QyvWxobqKrc https://youtu.be/QyvWxobqKrc
https://youtu.be/g5lsFIDzazc https://youtu.be/g5lsFIDzazc
No idea why I currently can't find a non walled version of the first link. It's important - and general googling would be "when to suspect a CSF Leak Ian Carroll"
Secondary to Dr. Carroll
Dr. Wouter Schievink at Cedars-Sinai also has good information... He's actually the pioneer of research IIRC.
Saved a dude from a diagnosis of dementia and spending the rest of his deluded days in a nursing home.
https://www.nytimes.com/2017/11/02/magazine/why-was-their-brothers-memory-and-behavior-so-strange.html https://www.nytimes.com/2017/11/02/magazine/why-was-their-br...
IIRC - in the end, based on decades of patient history, he just opened this guy up as a last resort and nearly missed - but did find the leak. Near full recovery.
It seems to be that there are some very high risk groups, like those with connective tissue disorders - specifically, Ehlers Danlos. Also, from Carroll's findings, a lot of people diagnosed with POTS are often misdiagnosed and truly have some small CSF Leak. Ehlers Danlos and POTS often go hand in hand as well...
- garganzol 7y agoGreat references. Anonymous browser page works well when trying to get a non-walled access to "when to suspect a CSF Leak Ian Carroll": https://www.mdedge.com/neurology/migraineresourcecenter/article/132780/headache-migraine/when-suspect-csf-leak https://www.mdedge.com/neurology/migraineresourcecenter/arti...