3 ms·
I generally like being alone in my room. My desk, tv, and bed are within 10 feet of each other. And I have never really put anything on my walls. Just white wal
by johnpowell 7y ago
I generally like being alone in my room. My desk, tv, and bed are within 10 feet of each other. And I have never really put anything on my walls. Just white walls, desk, bed, and tv. I have been in a basement for the last 18 months and I have been upstairs for about 5 minutes today. I have a bathroom and fridge and microwave down here.
But I have a feeding tube. That is how I ended up down here. We thought it would be the safest place to be while I was going through chemo. For six months while my immune system was garbage I just stayed down here and would only go up to get groceries or go to chemo/radiation. So I always joked that I think I could deal with solitary. I prefer being alone.
All that changed about a month ago.
The balloon on my PEG tube (DDG it) had deflated. And one night I went to change the gauze and while I pulled the gauze out it just started pouring out blood. In a matter of seconds my boxers had blood all over them. I was terrified. This much blood on the outside, how much blood is going into my stomach? Am I going to bleed to death? On the ride to the ER I was feeling faint..
I am getting to the solitary part.
But I saw a nurse right after checking in. And she determined I wasn't bleeding to death. I was going to have a bit of a wait to see a doctor. 4 hours to be exact. But they wanted me out of the ER waiting room due to being on pembro and there had just been a case of C-19 8 hours away.
So I was being walked to a room and she said they were low on places to put me. I was going to be in a "mental health" room. But they got a bed in there for me. White walls, a bed, no problem..
Huge problem!
It is so hard to describe. It was basically a cinder block box and a massive metal door. Everything tucked away so you couldn't kill yourself. And it was so loud since the air had to be pumped in. And I had a bed they wheeled in for me. And the door was open so I could go to the bathroom when I wanted. If that door was closed and I couldn't get out I would have lost my shit. And I nearly lost it anyway. Something about that room was just unlike anything you can imagine. It was like being buried alive.
I would imagine solitary is about a million times worse. I would classify it as torture.
And my feeding tube had slipped between my stomach and the "outside skin" tearing up everything making it bleed. Just shoved it back in and loaded up the balloon with more saline and went home. And then had the tube replaced the next day during normal hours.
- WaxProlix 7y agoThanks for the story, and the perspective. I appreciate it. Obviously it means nothing over the internet but I'm sitting here hoping the best for you. Good luck, man.
- dgellow 7y agoThanks for sharing. I wish you all the best <3
- AstralStorm 7y agoYup, the only experience that do it justice (besides being held) is a prolonged stay in an isolation tank. People do go crazy from this.
- blago 7y agoGood luck man. I hope things get better soon.