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Yes it happens in many countries. For example in UK someone mentioned they have Phenylketonuria and their NHS will not cover a medicine Kuvan that would improve
by pkaye 7y ago
Yes it happens in many countries. For example in UK someone mentioned they have Phenylketonuria and their NHS will not cover a medicine Kuvan that would improves their quality of life by allowing them to consume a reasonable amount of protein.
- cheerlessbog 7y agoMost likely that was based on a cost benefit analysis involving QALY. Which is logically a reasonable way to figure out how to spend Healthcare dollars. The US system is not.
- mantap 7y agoThe NHS negotiates prices directly with drug companies. Usually this situation happens if a drug company refuses to offer a reasonable price. Yes this sucks for anybody who depends on such a drug, but there is no alternative.
- KuiN 7y agoThis is misleading at best. The NHS Comissioning Board has commissioned Sapropterin for use. However, due to its extraordinarily high costs and limited efficacy compared to maintaining a restricted diet, it is only prescribed in scenarios where there is an urgent clinical need for treatments like Sapropterin. The NHS Commissioning Board's report on Tetrahydrobiopterin/Sapropterin/Kuvan is here: https://www.england.nhs.uk/wp-content/uploads/2013/04/e12-p-a.pdf https://www.england.nhs.uk/wp-content/uploads/2013/04/e12-p-...