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I wanted to add on the list of privacy invading examples. It's better I make the counter claim. The data collected has massive potential to improve medical res
by friendlybus 7y ago
I wanted to add on the list of privacy invading examples. It's better I make the counter claim.
The data collected has massive potential to improve medical research. Being able to validate database wide experiments on hundreds of millions of people at once is pretty incredible. There's likely to be a decade of insights to be found in this rapidly filling digital ocean of information.
In several years the clamour to get off the known web will empower a lot of security apps (not "privacy" apps, that are the opposite of their name) that are growing behind the scenes.
- mixmastamyk 7y agoSeems like folks should get to choose what experiments they participate in? Medical ethics 101.
- bitL 7y agoYou have a valid point, I did some Deep Learning-based medical research as well as analytics on top of FHIR and having more data is absolutely essential for e.g. finding correlations/covariate conditions/risk factors etc. However, there are massive privacy risks, economically-ruinous or literally life-threatening.
- Mizza 7y agoI recently encountered a company that uses ad-tech pioneered identification techniques to snake around patient privacy laws and clinical trial anonymity to sell re-identified data back to insurance companies. So no, fuck that.
- mdhardeman 7y agoI'm only one voice, but for my part, I am willing to forego the advancements that may come to medicine via this route. The societal costs of surveillance capitalism are only just starting to appear, and it's going to get so much worse before it gets better. And it's not all bad, but there's no preserving the little bit of good without canning the tons of bad.