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To me the thing that bothered me most was that a mental health site (Psychologytoday.com) that I used to find a therapist was passing the information on my sear
by alasdair_ 7y ago
To me the thing that bothered me most was that a mental health site (Psychologytoday.com) that I used to find a therapist was passing the information on my searches to Facebook, presumably to aid in targeted advertising.
Honestly, I think that health-related searches that are directly tied to a specific individual (especially without informed consent - I didn’t log in or receive any notice this was being done) should be covered by HIPPA just like any other personally identifiable health record.
The other weird one was the huge amount of data my bank was sending. 20+ requests per session. I have no idea why they would do that.
- sizzle 7y agoThis needs to be brought to the attention of legislators. Our digital health data needs to be protected like it is in a real world setting. I wonder what Google is doing with all those health related searches I'm making...
- alasdair_ 7y agoI think a solution would be for people to own their own personally identifiable information, in much the same way that a celebrity can own their “likeness”. Unauthorized copying or use of this information could be simple copyright infringement, which is apparently criminal enough to involve the FBI if you are a movie studio with enough money spend on political donations.
- otterlicious 7y agoThanks to this comment I noticed mine has a hospital: bannerhealth.com (8) The portal where I access my records is on a third-party vendor's domain and this is likely just from Like buttons on their public site. But I wouldn't be surprised to see the name of the specialist I saw (just to look up their phone number) or a condition they treated (the portal links to articles there) in those 8 entries. Haven't bothered to download my entire history just to see...yet.