4 ms·

IIRC you can request the data to be deleted. You have no way of knowing if it's been done correctly, but at least it's something you could do to prevent your ki

by 0xCMP 7y ago

IIRC you can request the data to be deleted. You have no way of knowing if it's been done correctly, but at least it's something you could do to prevent your kid's DNA from effectively being there.

ianferrel 7y ago
This is definitely worth doing. It won't protect you from nefarious actors with the data right now, but it will potentially protect you from nefarious actors who may someday get ahold of the db.
jedberg 7y ago
I seem to remember reading that even when they delete your data, they keep your sample. So really all it does is prevent you from getting it.
- testplzignore 7y ago
  This is not correct and in fact is the exact opposite. By default, they destroy the sample after analyzing it.
  - prepend 7y ago
    Not anymore, their new kits retain the sample for additional testing in the future.
    - jjeaff 7y ago
      Not sure if it has changed, but I was given the choice for them to keep or destroy the sample.
- jellicle 7y ago
  After account closure: "23andMe and our third party genotyping laboratory will retain your genetic information, date of birth, and sex as required for compliance with applicable legal obligations, including the U.S. Federal Clinical Laboratory Improvement Amendments of 1988 (CLIA), California Business and Professional Code Section 1265, and College of American Pathologists (CAP) accreditation requirements. 23andMe will retain limited information related to your data deletion request, such as your email address and Account Deletion Request Identifier, as necessary to fulfill your request and for the establishment, exercise or defense of legal claims." So they'll retain your DNA info and personally identifying info that you provided, forever. But the physical sample will be destroyed.
  - deleted 7y ago
    [deleted]
  - phkahler 7y ago
    >> date of birth, and sex That's enough to identify people in some zipcodes.
    - jjeaff 7y ago
      I'm pretty sure I didn't give them my birthdate. I also didn't give them my full name. If birthdate is required, I would have given a fake one. I don't see any reason to give them your exact birthdate. They could obviously dig into the billing data and get my info, but at least it's not right there together.
    - travisjungroth 7y ago
      Most people in most zip codes. 70 years * 365 days * 2 sexes = 51,100. The average zip code has about 10,000. Never thought of this before.
    - zimpenfish 7y ago
      John D Cook did a couple of good blog posts on this https://www.johndcook.com/blog/2018/12/07/no-funding-for-unwanted-news/ https://www.johndcook.com/blog/2018/12/07/no-funding-for-unw... https://www.johndcook.com/blog/2018/12/07/simulating-zipcode-sex-birthdate/ https://www.johndcook.com/blog/2018/12/07/simulating-zipcode...

by 0xCMP 7y ago

IIRC you can request the data to be deleted. You have no way of knowing if it's been done correctly, but at least it's something you could do to prevent your kid's DNA from effectively being there.

ianferrel 7y ago

This is definitely worth doing. It won't protect you from nefarious actors with the data right now, but it will potentially protect you from nefarious actors who may someday get ahold of the db.

jedberg 7y ago

I seem to remember reading that even when they delete your data, they keep your sample. So really all it does is prevent you from getting it.

testplzignore 7y ago
This is not correct and in fact is the exact opposite. By default, they destroy the sample after analyzing it.
- prepend 7y ago
  Not anymore, their new kits retain the sample for additional testing in the future.
  - jjeaff 7y ago
    Not sure if it has changed, but I was given the choice for them to keep or destroy the sample.
jellicle 7y ago
After account closure: "23andMe and our third party genotyping laboratory will retain your genetic information, date of birth, and sex as required for compliance with applicable legal obligations, including the U.S. Federal Clinical Laboratory Improvement Amendments of 1988 (CLIA), California Business and Professional Code Section 1265, and College of American Pathologists (CAP) accreditation requirements. 23andMe will retain limited information related to your data deletion request, such as your email address and Account Deletion Request Identifier, as necessary to fulfill your request and for the establishment, exercise or defense of legal claims." So they'll retain your DNA info and personally identifying info that you provided, forever. But the physical sample will be destroyed.
- deleted 7y ago
  [deleted]
- phkahler 7y ago
  >> date of birth, and sex That's enough to identify people in some zipcodes.
  - jjeaff 7y ago
    I'm pretty sure I didn't give them my birthdate. I also didn't give them my full name. If birthdate is required, I would have given a fake one. I don't see any reason to give them your exact birthdate. They could obviously dig into the billing data and get my info, but at least it's not right there together.
  - travisjungroth 7y ago
    Most people in most zip codes. 70 years * 365 days * 2 sexes = 51,100. The average zip code has about 10,000. Never thought of this before.
  - zimpenfish 7y ago
    John D Cook did a couple of good blog posts on this https://www.johndcook.com/blog/2018/12/07/no-funding-for-unwanted-news/ https://www.johndcook.com/blog/2018/12/07/no-funding-for-unw... https://www.johndcook.com/blog/2018/12/07/simulating-zipcode-sex-birthdate/ https://www.johndcook.com/blog/2018/12/07/simulating-zipcode...