This is my main concern too. That I'll fund the research and then not be able to afford the treatment. something like "You gave $50 a month for 20 yrs to unloc

This is my main concern too. That I'll fund the research and then not be able to afford the treatment. something like "You gave $50 a month for 20 yrs to unlock the treatment, but now it costs $10000 and you cannot afford that? Too bad."