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I can’t help but notice the $311,000 price. What if you are not covered by insurance? If embryos are screened for CF in IVF..what happens in a natural pregnanc
by jelliclesfarm 7y ago
I can’t help but notice the $311,000 price. What if you are not covered by insurance?
If embryos are screened for CF in IVF..what happens in a natural pregnancy? Would it still be legal to terminate the pregnancy?
What about other countries? I understand life changing medications are expensive. But shouldn’t the govt just pick up the tab? Imagine we have universal health care...wouldn’t they just do it?
- shpongled 7y agoMany pharmaceutical companies (incl. Vertex) have patient assistance programs that are need-based. I don't really know anything about how much is covered under those programs those, maybe someone else with experience can chime in
- Thriptic 7y agoI believe they have a free medicine program for people without insurance and copay subsidies for people with it. It appears to be handled on a case by case basis (https://www.vertexgps.com/ https://www.vertexgps.com/)
- bobochan 7y agoVertex has been playing hardball. They came to an agreement with Scotland last September and England in October, but other agreements are coming slowly. It is a real hardship for patients following Trikafta on Twitter and reading every day about gaining 30 points of lung function after only a few weeks, but not having the treatment available. CF patients may have close to a normal lifespan with Trikafta, assuming that progress is made on treating some common infections, such as a pseudomonas aeruginosa. That means a lot of patients getting a very expensive drug for a very long time.