4 ms·
I never knew anyone with CF until college. Didn't even know how serious it was. First day of the orientation, at our dorm I made a new friend who I later found
by therein 7y ago
I never knew anyone with CF until college. Didn't even know how serious it was.
First day of the orientation, at our dorm I made a new friend who I later found out has CF. He would take medication and enzymes every day and do his CF treatment with the vibrating jacket. He seemed very healthy and energetic otherwise, except for the occasional cough.
I stayed in touch with him over the four years. I've witnessed him go to parties, sing, study, help his friends. He was always very public about how he has CF.
I remember at one point a mutual friend of ours told me "I really like him, I'd love to be in a relationship with him but chances are he won't be with us in a few years, I am not sure if I want to get myself involved knowing that's what's going to happen". I didn't think too much of it, maybe thought she was worried too much.
This friend went on to get a few great internships, first one nearby so no flight necessary but the second was in Texas, flying from Illinois to Texas a few times, he must have been exposed to some pathogens in during the flights and this guy whom I knew to have had his CF under control for 4 years, whom had his chance to "make a wish" and had his wish despite make a wish foundation dragging their feet for years hoping maybe he would die before getting his wish, as they didn't expect him to live this long to begin with, he basically worsened and passed away in 4 days, literally a few weeks after graduating college.
Not sure if the recent advancements would have helped but whenever CF is mentioned, I think of him.
He lived his entire life with doctors telling him he will die young or he won't live to finish elementary school, high school and then college. He finished college.