I’m in the same boat as you. My PT has helped a lot. I discovered many of the treatments were in the book The Perrin Technique. The symptoms in the book describ

I’m in the same boat as you. My PT has helped a lot. I discovered many of the treatments were in the book The Perrin Technique. The symptoms in the book described me exactly. I gave her a copy to read and it has helped greatly. My PT told another one of her patients with similar symptoms who has gone from mostly bed/housebound to regular outings.