4 ms·
Yes there are lots of risks. At an individual level: even if there is no governmental back door, the necessity for a warrant and the criteria to award one scal
by probinso 7y ago
Yes there are lots of risks.
At an individual level: even if there is no governmental back door, the necessity for a warrant and the criteria to award one scales significantly based on who a person is investigating. If a warrant cannot be awarded against you specifically, lower criteria maybe awarded against relatives. Poor quality assurances could result in contamination of your sample. This is known to have happened in other countries for DNA material. Additionally, geans Express differently due to environmental pressures of an individual. Your DNA can provide information about your socioeconomic background and your upbringing. understanding the threat model of providing your DNA to a private company is important.
On an societal level: DNA is a fingerprint, that at scale can be used to identify protected groups. Providing your DNA allows for scale analysis against known traits of you and your compadres. This enables all sorts of dangerous future sciences. Medical IRBs are usually tasked with specifying their direct application that requires access to medical material. This requirement helps to prevent against arbitrary and scaled surveillance of populations. The private companies are not held to the same standard. You are giving or selling them access to your current expressed genome set.
Finally, a measure against good: private companies for which you give arbitrary data do not have to tell you the consequences of your shared data. There is nothing that requires the company to even do anything with your data. There is also nothing preventing the company from reselling or redistributed your data in many cases. If a company is purchased, terms of service may change from underneath your provided sample. You do not know the applications, nor do you know if there is any measurable benefit.
I would only participate in a program like this if there was a hard specific benefit to my life, and if I was beyond the age of trivial legal in discretions and had no intention of having children.
- ahmaman 7y agoWould love to see a device that I can locally analyse the results without sharing the data to any company. On the other hand, the way I understood it, is that the more data available, the more accurate are the analysis results.