See below. My main concern is early medical/biohacking groups that shared data, like medical tests, and engaged in extensive discussion/community driven resear

See below. My main concern is early medical/biohacking groups that shared data, like medical tests, and engaged in extensive discussion/community driven research. Such groups go back to at least the late 1990's. A main concern of the Archive Group (again, below) is art that was uploaded there. I'm sure those are not the only two classes of examples. See for example the bird watching group in Delhi that has been collecting data for decades. (In the link of the OP.)