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I get what you're saying but that problem already exists. Your medical data is already stored in a bunch of crappy insecure systems with inadequate protection.
by rjzzleep 7y ago
I get what you're saying but that problem already exists. Your medical data is already stored in a bunch of crappy insecure systems with inadequate protection.
So your ideal world that you're describing there already doesn't exist. Whereas working on expiring data and temporary access permissions on data you own and is stored on your own devices is a million times more secure than the cluster fuck we're trying to protect.
- trickstra 7y agoI was mostly referring to this thing you wrote earlier: "how can we make sure that we get the convenience part without the pervasive big brother aspect. I'm sure there is a way" - I think that simply cannot exist due to all the practical limitations with rigid systems and costs to issue punishment. And that clusterfuck is mostly the result of the power plays between multiple parties who are trying to hack each other's proposals, trying to win something over others. And that will also exist for as long as we are human. So I'm not really describing any ideal world, it is in fact quite sad. We will probably never have all our data truly in our own hands, even though it might seem easier and more secure. There are practical limitations of being human and there are competing human interests.