11 ms·

I have the same issue and it was completely resolved with Amytriptalene. Until I found the right doctor it felt like my life was over, and they kept giving me u

I have the same issue and it was completely resolved with Amytriptalene. Until I found the right doctor it felt like my life was over, and they kept giving me useless treatments. Contact Dr Hanno at Stanford; he’s the only competent one I have found.

bonestamp2 7y ago
I assume your doctors have considered it, but have either of you had a vasectomy or undescended testical?
- throwarayes 7y ago
  I have had a vasectomy (which my urologist knows, cause his office did it). I'd be curious why you say that. Is there a link?
  - bonestamp2 7y ago
    Sorry, no scientific link that I know of. I just have similar symptoms and wanted to see if there was any historical similarities. It may just be anecdotal but it seems there are a few others here with similar symptoms and history, perhaps there is a link.
  - frenchy 7y ago
    Unfortunately, age is probably the most obvious link.
    - bonestamp2 7y ago
      In addition to age, most of us have been sitting most of the day for all of that time. That probably doesn't help either.
- MrGilbert 7y ago
  I had a undescended testical when I was younger, and had a surgery when I was 5 or so. Curious to know the link, as I share the same symptoms as OP now that I‘m 30+.
- ianmcgowan 7y ago
  This, uh, struck a nerve. Can you explain the link? Or provide some terms for googling?
throwarayes 7y ago
Thanks so much. I'm actually not in the Bay Area. But yesterday I met a second urologist. They diagnosed me as CPPS after a 1-2 years of misdiagnosis from sleep doctors, primary, and another urologist. So I'm happy to finally have this diagnosis. My new urologist is having me try OTC drugs (Zyrtec, ibuprofen, benadryl) as he said that it can be linked to inflammation/allergies where NSAIDs and anti-histamines can help. I'm trying those out to see what happens. Did your doctor send you through that course of treatment to try out?

bonestamp2 7y ago

I assume your doctors have considered it, but have either of you had a vasectomy or undescended testical?

throwarayes 7y ago
I have had a vasectomy (which my urologist knows, cause his office did it). I'd be curious why you say that. Is there a link?
- bonestamp2 7y ago
  Sorry, no scientific link that I know of. I just have similar symptoms and wanted to see if there was any historical similarities. It may just be anecdotal but it seems there are a few others here with similar symptoms and history, perhaps there is a link.
- frenchy 7y ago
  Unfortunately, age is probably the most obvious link.
  - bonestamp2 7y ago
    In addition to age, most of us have been sitting most of the day for all of that time. That probably doesn't help either.
MrGilbert 7y ago
I had a undescended testical when I was younger, and had a surgery when I was 5 or so. Curious to know the link, as I share the same symptoms as OP now that I‘m 30+.
ianmcgowan 7y ago
This, uh, struck a nerve. Can you explain the link? Or provide some terms for googling?

throwarayes 7y ago

Thanks so much. I'm actually not in the Bay Area. But yesterday I met a second urologist. They diagnosed me as CPPS after a 1-2 years of misdiagnosis from sleep doctors, primary, and another urologist. So I'm happy to finally have this diagnosis. My new urologist is having me try OTC drugs (Zyrtec, ibuprofen, benadryl) as he said that it can be linked to inflammation/allergies where NSAIDs and anti-histamines can help. I'm trying those out to see what happens. Did your doctor send you through that course of treatment to try out?