4 ms·

Well honestly I have had a lot of sleep problems in the last 2 years. It seems I have CPPS[1], where I am up all night with an overactive bladder. The result is

Well honestly I have had a lot of sleep problems in the last 2 years. It seems I have CPPS[1], where I am up all night with an overactive bladder. The result is 5 or 6 out of 7 nights I get very little sleep. I am in a role where I'm in leadership of a startup. I got there by being ambitious and pushing my capabilities. Now that we've experienced some success because of that, the company needs me to maintain a high level of performance. Further, I have a lot of equity tied up in the company. I feel stuck from the perspective of wanting to support the team, because of my equity, and honestly because when I'm normal, this is what I WANT to be doing. I would love to be "fired" and just spend time with my kids until I figure this out. 1 - https://en.wikipedia.org/wiki/Chronic_prostatitis/chronic_pelvic_pain_syndrome https://en.wikipedia.org/wiki/Chronic_prostatitis/chronic_pe...

gnachman 7y ago
I have the same issue and it was completely resolved with Amytriptalene. Until I found the right doctor it felt like my life was over, and they kept giving me useless treatments. Contact Dr Hanno at Stanford; he’s the only competent one I have found.
- bonestamp2 7y ago
  I assume your doctors have considered it, but have either of you had a vasectomy or undescended testical?
  - throwarayes 7y ago
    I have had a vasectomy (which my urologist knows, cause his office did it). I'd be curious why you say that. Is there a link?
    - bonestamp2 7y ago
      Sorry, no scientific link that I know of. I just have similar symptoms and wanted to see if there was any historical similarities. It may just be anecdotal but it seems there are a few others here with similar symptoms and history, perhaps there is a link.
    - frenchy 7y ago
      Unfortunately, age is probably the most obvious link.
      - bonestamp2 7y ago
        In addition to age, most of us have been sitting most of the day for all of that time. That probably doesn't help either.
  - MrGilbert 7y ago
    I had a undescended testical when I was younger, and had a surgery when I was 5 or so. Curious to know the link, as I share the same symptoms as OP now that I‘m 30+.
  - ianmcgowan 7y ago
    This, uh, struck a nerve. Can you explain the link? Or provide some terms for googling?
- throwarayes 7y ago
  Thanks so much. I'm actually not in the Bay Area. But yesterday I met a second urologist. They diagnosed me as CPPS after a 1-2 years of misdiagnosis from sleep doctors, primary, and another urologist. So I'm happy to finally have this diagnosis. My new urologist is having me try OTC drugs (Zyrtec, ibuprofen, benadryl) as he said that it can be linked to inflammation/allergies where NSAIDs and anti-histamines can help. I'm trying those out to see what happens. Did your doctor send you through that course of treatment to try out?
throwawaaayyyyy 7y ago
Have you looked into pelvic floor physical therapy (including myofeedback)? Sounds like it might be stress related?
Pimpus 7y ago
I always get downvoted for saying this, but many diseases with "unknown" causes are psychological in origin. I get the feeling this is one of them. Read The Mindbody Prescription - hope it gives you your life back like it did with me.

gnachman 7y ago

I have the same issue and it was completely resolved with Amytriptalene. Until I found the right doctor it felt like my life was over, and they kept giving me useless treatments. Contact Dr Hanno at Stanford; he’s the only competent one I have found.

bonestamp2 7y ago
I assume your doctors have considered it, but have either of you had a vasectomy or undescended testical?
- throwarayes 7y ago
  I have had a vasectomy (which my urologist knows, cause his office did it). I'd be curious why you say that. Is there a link?
  - bonestamp2 7y ago
    Sorry, no scientific link that I know of. I just have similar symptoms and wanted to see if there was any historical similarities. It may just be anecdotal but it seems there are a few others here with similar symptoms and history, perhaps there is a link.
  - frenchy 7y ago
    Unfortunately, age is probably the most obvious link.
    - bonestamp2 7y ago
      In addition to age, most of us have been sitting most of the day for all of that time. That probably doesn't help either.
- MrGilbert 7y ago
  I had a undescended testical when I was younger, and had a surgery when I was 5 or so. Curious to know the link, as I share the same symptoms as OP now that I‘m 30+.
- ianmcgowan 7y ago
  This, uh, struck a nerve. Can you explain the link? Or provide some terms for googling?
throwarayes 7y ago
Thanks so much. I'm actually not in the Bay Area. But yesterday I met a second urologist. They diagnosed me as CPPS after a 1-2 years of misdiagnosis from sleep doctors, primary, and another urologist. So I'm happy to finally have this diagnosis. My new urologist is having me try OTC drugs (Zyrtec, ibuprofen, benadryl) as he said that it can be linked to inflammation/allergies where NSAIDs and anti-histamines can help. I'm trying those out to see what happens. Did your doctor send you through that course of treatment to try out?

throwawaaayyyyy 7y ago

Have you looked into pelvic floor physical therapy (including myofeedback)? Sounds like it might be stress related?

Pimpus 7y ago

I always get downvoted for saying this, but many diseases with "unknown" causes are psychological in origin. I get the feeling this is one of them. Read The Mindbody Prescription - hope it gives you your life back like it did with me.