3 ms·
While it's true that patient surveys generally report worsening after GET, that isn't quite the same standard of evidence as a Cochrane review. The Cochrane rev
by cpncrunch 7y ago
While it's true that patient surveys generally report worsening after GET, that isn't quite the same standard of evidence as a Cochrane review. The Cochrane review had similar conclusions in 2004, long before PACE [1].
A detailed survey by Action 4 ME found that of patients who reported undergoing GET:
"11 Had NO professional input (had they therefore paced themselves ?) – mostly with positive outcomes
6 Were supervised by occupational therapists – all with negative outcomes
3 Had been sent to the gym- all negative outcomes!" [2]
When GET is done properly, it generally involves reducing activity first of all if the patient is already overdoing it, reducing stress, replacing stressful with non-stressful activity, using heart rate monitors, etc.
[1] https://www.ncbi.nlm.nih.gov/pubmed/15266475 https://www.ncbi.nlm.nih.gov/pubmed/15266475
[2] http://web.archive.org/web/20071019011737/http://www.afme.org.uk/res/img/resources/AfME%20members%20survey.PDF http://web.archive.org/web/20071019011737/http://www.afme.or...
- GordonS 7y agoWe could argue back and forth in perpetuity about the quality of both the Cochrane review (for example, there are claims that their diagnostic criteria for even having CFS were not good enough) and the data against GET :) My point was simply that there does exist a large body of evidence supporting my original comment, even if there is also evidence against it.