I understand the general nature of your situation/question, but it’s hard to give meaningful advice without more specifics. Either way, if you say money is no o

I understand the general nature of your situation/question, but it’s hard to give meaningful advice without more specifics. Either way, if you say money is no object, what about time? For edge case medical conditions that fall outside the cookie cutter ddx procedure your local doctor is familiar with, doing the research yourself is often the only option. I had to do this for a serious but obscure illness earlier this year. Alternately you can doctor shop and hope to find one who has the interest level and attention to detail to tackle your condition. (Recommendations can help.) But these doctors are few and far between, sadly. Edit: by the way, I don’t think this is an issue that money can solve directly, which is frustrating. If money is truly no object but time is, one option might be to hire a bright college student as a research assistant, as someone else mentioned here.