4 ms·

I am better now but still have some aches here and there but its nothing like what it was before, like the person above mentioned I would recommend a fast first

I am better now but still have some aches here and there but its nothing like what it was before, like the person above mentioned I would recommend a fast first and foremost just make sure its a controlled fast and she has a doctor monitoring her overall health while she does it, esp. if longer than 3 days. Me personally I didnt know about the fasting at the time but the doc had me on a combination of the following: 1.Cats Claw 2.Oregano Oil 3.Thorne ATP Formula 4.Corvalen D-Ribose 5.Thorne Adrenal Cortex This was in combination with a strict diet, I cant seem to remember all the details anymore but it was something along the lines of 0 sugars, 0 carbs, high fats, lots of greens, protein via white meat only. I would also take a look at Stephen Buhner's protocol, the article below is a good read as well. https://medium.com/p/6e3664fce54f/responses/show https://medium.com/p/6e3664fce54f/responses/show

asdf21 7y ago
Long water fasts + cardio + antibiotics.
- eigenloss 7y ago
  HN is really not the place to offer medical advice. Anyone reading this with a therapeutic need should see a doctor, preferably more than one.
  - GiorgioG 7y ago
    That's easy for someone who isn't grappling with this "non-existent" illness as most mainstream doctors would have you believe. I spent 3 years (and thousands of dollars) trying to find out what was wrong with me until a neurologist tested me for Rocky Mountain Spotted Fever. It came back positive, he gave me 2 rounds of doxycycline and sent me on my way. Anyone with experience with prolonged tick-borne illnesses can tell you, that's not going to fix it. I went and got an appointment with a lyme-literate doctor (there's the typical 2-3 month wait for an appointment to see any of these doctors - if you're lucky.)
    - eigenloss 7y ago
      https://news.ycombinator.com/item?id=20496393 https://news.ycombinator.com/item?id=20496393 I don't need to be told that tests are unreliable or that doctors can be as misinformed as any of us. I am encouraging anybody in this thread who is personally affected to seek medical advice, not the advice of random internet commenters. Congratulations on beating RMSF.
      - GiorgioG 7y ago
        My point is people are desperate - and for some it's difficult to find (or pay) a LLMD. There are groups on FB (one of the only uses I have for FB) with thousands of members who give/get advice. No they aren't doctors, but I wouldn't discount their lack of certification - they have experience. Unfortunately I have not yet beat it (or whatever other disease(s) the tick gifted me.) I'm still on 3-4 different antibiotics and feeling generally like crap. But it's 'only' been 3 months.
        eigenloss 7y ago
        Good luck!
  - beagle3 7y ago
    Many people see many doctors, and find no cure and no improvement. After seeing doctors and not getting better, it is useful to get an idea of what worked for other people because it might lead one on the right path. Personally, I consider advice - both from doctors and on Internet forums - as advice, not gospel. I do research what doctors recommend, because they too are wrong or implicitly optimize for different criteria than you do (cost of treatment or their own liability vs your well being)
zby 7y ago
If diet helped - than maybe it was some kind of food allergy that was causing the symptoms not the lyme? Maybe you had lyme some time in the past - and this is why the tests were positive - but the symptoms were because of some food allergy causing Rheumatoid Arthritis.
- FreeFull 7y ago
  It is possible to get an allergy to beef from a tick bite. For an allergy though, one would expect the symptoms to return as soon as normal diet is resumed.
- fezz 7y ago
  Diet can play a big factor in autoimmune disorders. proteins leaking from the gut into the bloodstream can trigger a strong immune system reaction which makes the autoimmune disorder flare up.
  - zby 7y ago
    That is what I was writing about - autoimmune disorder causing the symptoms not the borrelia bacteria. But it is also possible that the bacteria caused the autoimmune disorder first.
randomname93857 7y ago
>it was something along the lines of 0 sugars, 0 carbs are grains or beans part of such diet or are excluded?

asdf21 7y ago

Long water fasts + cardio + antibiotics.

eigenloss 7y ago
HN is really not the place to offer medical advice. Anyone reading this with a therapeutic need should see a doctor, preferably more than one.
- GiorgioG 7y ago
  That's easy for someone who isn't grappling with this "non-existent" illness as most mainstream doctors would have you believe. I spent 3 years (and thousands of dollars) trying to find out what was wrong with me until a neurologist tested me for Rocky Mountain Spotted Fever. It came back positive, he gave me 2 rounds of doxycycline and sent me on my way. Anyone with experience with prolonged tick-borne illnesses can tell you, that's not going to fix it. I went and got an appointment with a lyme-literate doctor (there's the typical 2-3 month wait for an appointment to see any of these doctors - if you're lucky.)
  - eigenloss 7y ago
    https://news.ycombinator.com/item?id=20496393 https://news.ycombinator.com/item?id=20496393 I don't need to be told that tests are unreliable or that doctors can be as misinformed as any of us. I am encouraging anybody in this thread who is personally affected to seek medical advice, not the advice of random internet commenters. Congratulations on beating RMSF.
    - GiorgioG 7y ago
      My point is people are desperate - and for some it's difficult to find (or pay) a LLMD. There are groups on FB (one of the only uses I have for FB) with thousands of members who give/get advice. No they aren't doctors, but I wouldn't discount their lack of certification - they have experience. Unfortunately I have not yet beat it (or whatever other disease(s) the tick gifted me.) I'm still on 3-4 different antibiotics and feeling generally like crap. But it's 'only' been 3 months.
      - eigenloss 7y ago
        Good luck!
- beagle3 7y ago
  Many people see many doctors, and find no cure and no improvement. After seeing doctors and not getting better, it is useful to get an idea of what worked for other people because it might lead one on the right path. Personally, I consider advice - both from doctors and on Internet forums - as advice, not gospel. I do research what doctors recommend, because they too are wrong or implicitly optimize for different criteria than you do (cost of treatment or their own liability vs your well being)

zby 7y ago

If diet helped - than maybe it was some kind of food allergy that was causing the symptoms not the lyme? Maybe you had lyme some time in the past - and this is why the tests were positive - but the symptoms were because of some food allergy causing Rheumatoid Arthritis.

FreeFull 7y ago
It is possible to get an allergy to beef from a tick bite. For an allergy though, one would expect the symptoms to return as soon as normal diet is resumed.
fezz 7y ago
Diet can play a big factor in autoimmune disorders. proteins leaking from the gut into the bloodstream can trigger a strong immune system reaction which makes the autoimmune disorder flare up.
- zby 7y ago
  That is what I was writing about - autoimmune disorder causing the symptoms not the borrelia bacteria. But it is also possible that the bacteria caused the autoimmune disorder first.

randomname93857 7y ago

>it was something along the lines of 0 sugars, 0 carbs are grains or beans part of such diet or are excluded?