3 ms·
I feel you. I have RSD, a related disease, and even today half the doctors I see either dismiss it or do not believe in it. I went through YEARS of blame and de
by hestipod 7y ago
I feel you. I have RSD, a related disease, and even today half the doctors I see either dismiss it or do not believe in it. I went through YEARS of blame and denial before a very kind specialist in Europe spent time with me and gave me answers. By then it was too late to put it in remission, but their treatments did reduce it some, for which I am grateful as I'd not have lasted beyond that time without it. But day to day its still life altering. It's taken so much from me, that I cannot even afford to deal with it well anymore, let alone the other inevitable medical things and aging.
Pain is too often ignored, dismissed, miscategorized. While psychosomatic issues and stress positively make things worse, it's not always the root of all issues and too often it's projected as such. It will ultimately be the end of me as there is no realistic way to get enough back to survive long term.