3 ms·

Are you currently still on the antibiotics? I'm curious what will happen after the treatment. Apparently the parent poster tried antibiotics multiple times as w

by vekker 7y ago

Are you currently still on the antibiotics? I'm curious what will happen after the treatment. Apparently the parent poster tried antibiotics multiple times as well, not that I want to give false hope... Also, I am not a native English speaker, but I am not sure about why anyone would immediately think a "lyme doctor" would be a "quack doctor"? Wouldn't a medical doctor specialised in lyme disease (i.e. lyme doctor?) be the most qualified to diagnose & treat lyme disease? Another question if I may: when/how were you diagnosed? How did you know? This has personal relevance because I recently spotted the signature symptom for stage 1 lyme disease (erythema migrans) and immediately started treatment with doxycycline... really hoping that stops it from progressing.

GiorgioG 7y ago
I am still on the antibiotics. While my doctor hasn't specifically told me how long I'll be on them, I suspect it'll be for at least another 4-6 months. The traditional medical establishment in the United States doesn't believe in "chronic" tick-borne infections - hence why "lyme doctors" are treated like quacks. I was diagnosed in May. As far as how did I know? Well, I was tested for almost everything else under the sun: (before a 2nd neurologist ordered the Rocky Mountain Spotted Fever blood test) multiple-sclerosis (nerve conduction study, skin biopsy), rare cancers (carcinoid), mast-cell activation syndrome (on top of my neurological symptoms I also have facial flushing which is totally random and seems to have no obvious trigger(s)) It's been a long journey so far and I have no illusion that I'm cured/symptom free, but the minocycline, rifampin & azithromycin have helped immensely. My short term memory still sucks (it was never great to begin with), but not nearly as bad. My brain fog has lifted, which was my biggest concern. Between my brain fog and memory issues, I was incredibly grumpy - I've actually started to enjoy life again for the first time in 3 years since this started.

by vekker 7y ago

GiorgioG 7y ago

I am still on the antibiotics. While my doctor hasn't specifically told me how long I'll be on them, I suspect it'll be for at least another 4-6 months. The traditional medical establishment in the United States doesn't believe in "chronic" tick-borne infections - hence why "lyme doctors" are treated like quacks. I was diagnosed in May. As far as how did I know? Well, I was tested for almost everything else under the sun: (before a 2nd neurologist ordered the Rocky Mountain Spotted Fever blood test) multiple-sclerosis (nerve conduction study, skin biopsy), rare cancers (carcinoid), mast-cell activation syndrome (on top of my neurological symptoms I also have facial flushing which is totally random and seems to have no obvious trigger(s)) It's been a long journey so far and I have no illusion that I'm cured/symptom free, but the minocycline, rifampin & azithromycin have helped immensely. My short term memory still sucks (it was never great to begin with), but not nearly as bad. My brain fog has lifted, which was my biggest concern. Between my brain fog and memory issues, I was incredibly grumpy - I've actually started to enjoy life again for the first time in 3 years since this started.