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I'll answer both of your questions, spoken and unspoken: The first: an excellent question. It's hard to actually pay a doc for their time. We're all up to our
by arkades 7y ago
I'll answer both of your questions, spoken and unspoken:
The first: an excellent question. It's hard to actually pay a doc for their time. We're all up to our eyeballs in the current system, including contracts with insurers that say things like "if this person is covered, you're bound to take what we are willing to pay, this person can't pay you extra to buy extraordinary services." It's not trivial at all to buy a doc's time. That said, the best method is to call their office and ask to speak to their practice manager. That's the person who is usually tasked with keeping an eye on finances, and has enough time and attention left over to hear things like "I need a non-clinical medical opinion, I am willing to pay for the doctor's time for an interview." That is assuming you are paying them like a consultant, and not paying them to provide an actual medical opinion for your wife. The latter gets gutted by insurance contracts (unless your insurer has absolutely no relationship with this doc, in which case, yes, you can pay them for their services. Some docs misread some state statutes as not allowing cash services for patients that aren't insured with them, which is both wrong and ridiculous.)
The second: how to find a clinical trial for your wife. Honestly, our job is to keep up with clinical trials once they're published. Clinical trials in recruitment aren't on anyone's radar - there's no convenient way of finding them (inconveniently: clinicaltrials.gov) and no value to clinicians to read such a list even if it existed. The only ones we are aware of are the ones that, as you said, are recruiting patients at our location. The people that benefit from publishing trial availability most are the pharmaceutical companies that will ultimately reap a financial reward, so they try to reach out to patients directly via advocacy groups and things like centerwatch. So,if I really needed to find one, I'd:
(0) Check www.centerwatch.com
(a) Call major centers specializing in my issue, since they're the ones that most trials will pull into recruitment and/or they're the ones originating the trials. For cancer, that means contacting the relevant physicians at Dedicated Cancer Centers such as Dana-Farber Cancer Institute (full list: http://www.adcc.org/ http://www.adcc.org/).
(b) Most cancers have patient advocacy groups, and they're often aware of major trials underway for their relevant cancer. For instance, for Sarcoma, you'd check out something like curesarcoma.org (who have a dedicated clinical trials resource page (https://www.curesarcoma.org/patient-resources/sarcoma-clinical-trials/ https://www.curesarcoma.org/patient-resources/sarcoma-clinic...).
- codingdave 7y ago> this person can't pay you extra to buy extraordinary services. That is frustrating to hear. I'd gladly pay a doc to spend the time to really get into things with me. Although I've learned to manage my problems, I'd prefer an actual solution to the current state of things. I'm intrigued by a couple other things you said: 1) That we might be able to work something out with the practice to pay for consultancy. With my specific problems, I'm not even sure what specialist I need to talk to. I've seen many. They all try a couple things then point at a different specialty. Do you think someone could consult to at least narrow down which specialist can really solve the problem, or is that too close to a medical opinion? 2) That if I talk to someone not on my insurance, I probably could hire them. That sounds completely feasible. Say I did find someone with no relationship to my insurer - how would you recommend approaching them? Calling up and scheduling an appointment sounds like they'd expect me to just be part of the machine.
- arkades 7y ago1) I think it’s effectively a medical opinion. It’s implicitly a broad-brush diagnosis. 2) I would call the office - or drop by - and speak to the practice manager. Doc on the clock usually doesn’t have time to take a dump, and the front desk staff don’t really understand anything beyond “make an appointment.” * * corollary to all of the above: front desk staff nearly always suck because we can’t reasonably invest in better. Since physician revenue is strictly number of patients per year * whatever the average reimbursement rate is, and since price caps mean our waiting rooms are basically always at capacity, ... a 40k/yr front desk means precisely the same as a 80k/yr front desk to our revenue, but that extra 40k comes straight out of our pockets. Thus, our staff is generally bottom of the barrel. At least in private practice, what little of it survives.