4 ms·
Any advice on POTS treatment avenues? There seems to be poor GP knowledge around the condition, apart from giving fluids via a port to reduce symptoms.
by hnzix 7y ago
Any advice on POTS treatment avenues? There seems to be poor GP knowledge around the condition, apart from giving fluids via a port to reduce symptoms.
- DoreenMichele 7y agoI'm not familiar with POTS, but a quick google suggests that adding salt (and fluids) to the diet is a standard treatment. I have a different condition where a high salt diet is a standard medical recommendation. I benefited from getting really picky about salt quality, though that's not anything doctors ever talked about. I eschewed table salt in favor of sea salt containing a mix of natural minerals and micronutrients, not just sodium chloride. I also generally recommend keeping a journal to track diet and symptoms in the face of any chronic condition.
- erentz 7y agoI’m mostly familiar with POTS in patients with other chronic symptoms such as fatigue. I’ve been on high dose IVIG and it’s been helping my POTS a lot. Take a look at a video on YouTube by a Harvard doctor Anna Louise Oaklander called Small Fibers Big Problem about the association they are making with something they label aaSFPN. Also take a look at some results for adrenergic and muscinaric auto antibodies, which are showing up in patients with POTS and other dysautonomias.
- hnzix 7y agoThank you very much for providing this information, those are some great leads I'll follow up.