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If you are living with CFS i recommend giving https://cfsremission.com/ https://cfsremission.com/ a look.

by jaxgeller 7y ago

rfugger 7y ago
Also check out http://recoveryfromcfs.org/ http://recoveryfromcfs.org/.
- majkinetor 7y ago
  Orthomolecular approach. Nice.
colordrops 7y ago
Crazy, I basically self diagnosed myself with CFS and got rid of my symptoms over time by discovering most of the recommendations on this page myself. I figured it had something to do with a funky immune system and gut bacteria, and changed my diet and took supplements and probiotics, and it's mostly gone. I even take bacopa, wild. This is really heartening to see that I was on the right track. My wife thinks I'm a hypochondriac with a bunch of placebos.
jchw 7y ago
Woah, I’m now wondering if CFS might be what’s been wrong with me for a while, but I’m not sure. I definitely have terrible sleep, I can barely stay awake during meetings, and I have some of the other symptoms sometimes associated with this (tender lymph nodes in neck, IBS, tinnitus.) I’ve been in and out of the doctor for a couple years, with weird pains, and most recently a lymph node that is a little enlarged in the neck. Obviously there are some scary (but unlikely) potential explanations. But, my sleep quality degrading over the years is something that has been happening much slower, and started much earlier. Not a huge fan of self diagnosis but maybe some of the proposed dietary changes would be worth trying, since they seem fairly innocuous. I’m sure eating more apples won't hurt. If anyone has experience with CFS and has advice, I’m all ears. I’d kill to sleep like I did when I was 18.
- cpncrunch 7y ago
  (I'm fully recovered from CFS, although I still have occasional mild IBS). There is certainly an overlap between CFS, IBS, lymph nodes, pain, fatigue, sleep problems and tinnitus: they can all be caused by stress. The most likely explanation ("I can barely stay awake during meetings") is probably that you need a better job. Having said that, you do need to rule out other explanations, such as cancer. Talk to your doctor and see what he/she thinks.
  - jchw 7y ago
    Meetings were just an example; I can barely stay awake period. My job is great, and my work life balance is good. And of course, we are watching for cancer. It’s very unlikely at my age, but I definitely can’t rule it out.
    - cpncrunch 7y ago
      Do you have exactly the same symptoms when you take 2 weeks off work to go on holiday (say, after the first week)?
      - jchw 7y ago
        Yeah, last holiday I took I felt horrid the entire time. I actually had some fairly bad headaches and ended up getting tests done; they came back normal.
        cpncrunch 7y ago
        Headaches and fatigue typically happen after the stress, so if you do have a stressful job then it can take a few days or longer to recover. Even if you like your job and you think it's great, that doesn't mean it isn't stressful. IMHO if you have meetings then your job isn't great, but maybe you're a strange person who enjoys meetings :) Anyway, all I'm saying is to think carefully about your job and decide whether or not it is right for you. Also worth getting a sleep study done, in case it is sleep apnea.

If you are living with CFS i recommend giving https://cfsremission.com/ https://cfsremission.com/ a look.

rfugger 7y ago

Also check out http://recoveryfromcfs.org/ http://recoveryfromcfs.org/.

majkinetor 7y ago
Orthomolecular approach. Nice.

colordrops 7y ago

Crazy, I basically self diagnosed myself with CFS and got rid of my symptoms over time by discovering most of the recommendations on this page myself. I figured it had something to do with a funky immune system and gut bacteria, and changed my diet and took supplements and probiotics, and it's mostly gone. I even take bacopa, wild. This is really heartening to see that I was on the right track. My wife thinks I'm a hypochondriac with a bunch of placebos.

jchw 7y ago

Woah, I’m now wondering if CFS might be what’s been wrong with me for a while, but I’m not sure. I definitely have terrible sleep, I can barely stay awake during meetings, and I have some of the other symptoms sometimes associated with this (tender lymph nodes in neck, IBS, tinnitus.) I’ve been in and out of the doctor for a couple years, with weird pains, and most recently a lymph node that is a little enlarged in the neck. Obviously there are some scary (but unlikely) potential explanations. But, my sleep quality degrading over the years is something that has been happening much slower, and started much earlier. Not a huge fan of self diagnosis but maybe some of the proposed dietary changes would be worth trying, since they seem fairly innocuous. I’m sure eating more apples won't hurt. If anyone has experience with CFS and has advice, I’m all ears. I’d kill to sleep like I did when I was 18.

cpncrunch 7y ago
(I'm fully recovered from CFS, although I still have occasional mild IBS). There is certainly an overlap between CFS, IBS, lymph nodes, pain, fatigue, sleep problems and tinnitus: they can all be caused by stress. The most likely explanation ("I can barely stay awake during meetings") is probably that you need a better job. Having said that, you do need to rule out other explanations, such as cancer. Talk to your doctor and see what he/she thinks.
- jchw 7y ago
  Meetings were just an example; I can barely stay awake period. My job is great, and my work life balance is good. And of course, we are watching for cancer. It’s very unlikely at my age, but I definitely can’t rule it out.
  - cpncrunch 7y ago
    Do you have exactly the same symptoms when you take 2 weeks off work to go on holiday (say, after the first week)?
    - jchw 7y ago
      Yeah, last holiday I took I felt horrid the entire time. I actually had some fairly bad headaches and ended up getting tests done; they came back normal.
      - cpncrunch 7y ago
        Headaches and fatigue typically happen after the stress, so if you do have a stressful job then it can take a few days or longer to recover. Even if you like your job and you think it's great, that doesn't mean it isn't stressful. IMHO if you have meetings then your job isn't great, but maybe you're a strange person who enjoys meetings :) Anyway, all I'm saying is to think carefully about your job and decide whether or not it is right for you. Also worth getting a sleep study done, in case it is sleep apnea.