4 ms·

It's somewhat irresponsible to suggest that this is psychosomatic, even in the face of a highly reliable biomarker. CFS sufferers have had insult added to injur

by hliyan 8y ago

It's somewhat irresponsible to suggest that this is psychosomatic, even in the face of a highly reliable biomarker. CFS sufferers have had insult added to injury for decades due to physicians dismissing them as hypochondriacs. This is a complex, debilitating syndrome that requires a lot of study. The type of fatigue these individuals experience is a lot more severe than "I'm tired and I don't know why"

benatkin 8y ago
For many of them it could be that they expect to feel better than they do, buy how they feel is closer to normal than they realize, given their body fat %, blood pressure, cholesterol, triglycerides, atherosclerosis, breathing problems, prediabetes, acid reflux, etc. They are feeling bad compared to their parents and grandparents at their age, but not due to what people normally think of as a medical condition.
- Smaug123 8y ago
  I don't know whether you've experienced chronic fatigue, but from your comments on this thread it looks like you haven't. It is dramatically more debilitating than you seem to give it credit for. (I haven't personally suffered from CFS, but I know people who have. Additionally, I have experienced months of insomnia which resulted in my being unable to do pretty much anything - lack of sleep is truly crippling - and I can only presume that CFS makes you feel much worse in a wide variety of ways.)
- Vomzor 8y ago
  You clearly have a very wrong idea about cfs. Walking 100 meters and then you’re very sick for a couple of days, that’s cfs. Can’t get out of bed sick.
- ufo 8y ago
  CFS is much more debilitating than you make it sound and it is not about "feeling bad". Some patients are effectively bedridden. The disease is very poorly understood but one common symptom seems to be a low tolerance for excercise. CFS patients recover very poorly from exercise, and a day of even moderately increased physical ativity may cause them to "crash" and become debilitated for multiple days. It is also worth mentioning that CFS patients often have normal results for cholesterol, blood pressure and so on. One reason why biomarker studies like this one are important is exactly because currently CFS patients often end up bouncing from doctor to doctor, and none of the diagnosis ever work.
DanBC 8y ago
It's also irresponsible to suggest, as you do here, that "psychosomatic" means "they're making it up". Even if CFs is a somatoform disorder the sufferers aren't making it up, they genuinely feel fatigued.
- GordonS 8y ago
  That's a bit of an uncharitable reading of the parent's comment - they do specific call out some doctors as making patients feel this way, rather than assert that as their own opinion.
  - DanBC 8y ago
    Read their other comments. They're clearly saying that CFS isn't mental illness, it's "real" physical illness, and this is a common trope in the CFS community.
    - GordonS 8y ago
      Sorry, but I disagree with your interpretation. It's quite possible to want your illness accurately diagnosed and described, while still being vehemently against the stigma of mental illness.

by hliyan 8y ago

benatkin 8y ago

For many of them it could be that they expect to feel better than they do, buy how they feel is closer to normal than they realize, given their body fat %, blood pressure, cholesterol, triglycerides, atherosclerosis, breathing problems, prediabetes, acid reflux, etc. They are feeling bad compared to their parents and grandparents at their age, but not due to what people normally think of as a medical condition.

Smaug123 8y ago
I don't know whether you've experienced chronic fatigue, but from your comments on this thread it looks like you haven't. It is dramatically more debilitating than you seem to give it credit for. (I haven't personally suffered from CFS, but I know people who have. Additionally, I have experienced months of insomnia which resulted in my being unable to do pretty much anything - lack of sleep is truly crippling - and I can only presume that CFS makes you feel much worse in a wide variety of ways.)
Vomzor 8y ago
You clearly have a very wrong idea about cfs. Walking 100 meters and then you’re very sick for a couple of days, that’s cfs. Can’t get out of bed sick.
ufo 8y ago
CFS is much more debilitating than you make it sound and it is not about "feeling bad". Some patients are effectively bedridden. The disease is very poorly understood but one common symptom seems to be a low tolerance for excercise. CFS patients recover very poorly from exercise, and a day of even moderately increased physical ativity may cause them to "crash" and become debilitated for multiple days. It is also worth mentioning that CFS patients often have normal results for cholesterol, blood pressure and so on. One reason why biomarker studies like this one are important is exactly because currently CFS patients often end up bouncing from doctor to doctor, and none of the diagnosis ever work.

DanBC 8y ago

It's also irresponsible to suggest, as you do here, that "psychosomatic" means "they're making it up". Even if CFs is a somatoform disorder the sufferers aren't making it up, they genuinely feel fatigued.

GordonS 8y ago
That's a bit of an uncharitable reading of the parent's comment - they do specific call out some doctors as making patients feel this way, rather than assert that as their own opinion.
- DanBC 8y ago
  Read their other comments. They're clearly saying that CFS isn't mental illness, it's "real" physical illness, and this is a common trope in the CFS community.
  - GordonS 8y ago
    Sorry, but I disagree with your interpretation. It's quite possible to want your illness accurately diagnosed and described, while still being vehemently against the stigma of mental illness.