4 ms·
I also have Situs Inversus Totalis. Thankfully I haven't had any major health incidents to date, and my experiences with doctors and nurses has been similar. EK
by shages 7y ago
I also have Situs Inversus Totalis. Thankfully I haven't had any major health incidents to date, and my experiences with doctors and nurses has been similar. EKGs in particular can be quite interesting. :)
I'm also diagnosed with Primary Ciliary Dyskinesia, and your mention of asthma issues as a child had me wondering if it's something you're aware of? About 50% of people with PCD also have Situs Inversus Totalis. The primary symptoms are a chronic cough and congestion.
https://en.wikipedia.org/wiki/Primary_ciliary_dyskinesia https://en.wikipedia.org/wiki/Primary_ciliary_dyskinesia
- LilBytes 7y agoHoly shit! Yeah perhaps, I'm due for a medical examination, I'll bring this up. Do you often get chest infections too? Apparently that's very common as it is with me and those who have DC or Situs Inversus.
- rscho 7y agoThe parent is correct. This is a common association in situs inversus, and you should seek specialized care. Your GP will probably not know about that (it's extremely rare), so if you have to insist, do so.
- shages 7y agoYes, it's common, and I have regular mucus build up because, well, my cilia don't clear it well for me. :) As rscho mentioned, you should definitely bring it up and see if you can get a referral to a specialist. I see a pulmonologist regularly to keep an eye on it. The term Kartagener syndrome (SI + PCD) may ring a bell to them more than PCD will. I was misdiagnosed as a kid as having asthma (or something like that, I don't remember this well), and doctors prescribed an inhaler but it had no effect. My parents had me seen by a pulmonologist which then led to a diagnosis.
- kingkawn 7y agoAbsolutely related! The ciliary malfunction causes the situs inversus in embryonic development by swishing your chemical development signals the wrong direction