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Tell HN: My healthcare provider got my data without my consent
It shouldn't be possible for a company to hand a healthcare provider tons of data about you without your explicit consent -- but it is and I want you to know.
Arivale (arivale.com) was a wellness company that abruptly closed yesterday. The data they collected included whole genome data, clinical blood markers, microbiome, and lots more, including a lot of experimental data extracted from biosamples that the end user never saw and didn't know existed. A small transition team is staying on for a short time to move data over to Providence. Providence is the third largest healthcare provider in the country. There's a good chance you get your healthcare through them, even if you don't realize it. I do. And now they own lots of data about me without my explicit consent thanks to this massive final data dump.
The moral of the story: Don't give your health data out as freely as I did. You don't know where it will end up. I wish that we were better protected in this arena than we are.
- thedevindevops 7y agoAre you American or Canadian?
- anonymous654321 7y agoAmerican
- thedevindevops 7y agoYou should be protected by the HIPAA legislation.