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The decision is easier when you have conversations and put wishes in writing before they are necessary. And update them as needed. My dad has ESRD and we've ha
by silencio 8y ago
The decision is easier when you have conversations and put wishes in writing before they are necessary. And update them as needed.
My dad has ESRD and we've had some conversations about what he would want at the end. Many of the potential issues we've discussed involve getting 2nd+ opinions if necessary... but he also makes it clear (and I agree with him) that at some point the treatment and recovery process itself might not be worth it for an unknown recovery for him.
I think this communication respects that this is a difficult decision, and I've come to the conclusion that decisions can be reached that may not be the "best" objective decision (e.g surviving another 33 years) but it is a decision that the person supports, so that you as a survivor can be at peace with it too. So like, if my dad were in a situation similar to your relative - I already know that he would feel that the numerous procedures and years of recovery outweigh 33 more years of life. I would not seek full treatment. Knowing this makes me at peace with anything that can happen, more than anything else we could do.
I was inspired largely by Atul Gawande's book "Being Mortal" - where he talks about and discusses ways that we can figure out how to live our life at the end, rather than be worried about death.
- belorn 8y ago(sorry for delayed reply, the comment brought back quite a few things). Yes. Having the conversation before really helps. Not only is it said to put less stress on those close to oneself, but it put things in a bit larger perspective. A 2nd+ opinion is also critical, and who know what one would have said in our case. I strongly hope that the medical science is today better than 30 years ago so that the advice the doctors gives are today more accurate. For myself I have thought a few times about what I would want, but have not reached a decision. The article is a strong reminder how badly it can and in many cases will happen when someone demand full treatment.