3 ms·

Yes, software engineer. I have widespread tendon pain caused by a severe reaction to a popular antibiotic. I generally am pretty normal just get pain. Some med

by avgDev 8y ago

Yes, software engineer. I have widespread tendon pain caused by a severe reaction to a popular antibiotic. I generally am pretty normal just get pain. Some medical professional label my symptoms as "fibromyalgia", however, this has been causing a lot of problems to finding the actual cause. Here is a link if you are interested on the subject: https://www.ema.europa.eu/en/medicines/human/referrals/quinolone-fluoroquinolone-containing-medicinal-products https://www.ema.europa.eu/en/medicines/human/referrals/quino... Currently, most doctors in the US are not aware of the issue and nobody wants to speak up. It has been an odd experience for me.

atdrummond 8y ago
A fluoroquinolone by chance?
- avgDev 8y ago
  Yes, I am really surprised you were able to make that guess.
  - Obi_Juan_Kenobi 8y ago
    The first google hit for "antibiotic nerve damage" is https://www.webmd.com/brain/news/20130826/fda-strengthens-fluoroquinolone-warning https://www.webmd.com/brain/news/20130826/fda-strengthens-fl... It is perhaps under-recognized, but it's not obscure. Looks like IVIG is the most promising treatment currently: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5833158/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5833158/
    - avgDev 8y ago
      Very interesting I have not heard of IVIG previously! I will bring this up with an MD. The biggest issues are doctors just very skeptical and often refuse to even look at studies. I have to walk a fine line between being educated and appearing like I'm self diagnosing.
      - cm2012 8y ago
        A good trick is to tell doctors your in-law (or something) is a doctor and recommended asking your regular doctor about treatment X. They're more likely than not to start considering that option seriously.
  - xkcd-sucks 8y ago
    It's pretty easy if you've gotten got. For example, my sense of smell got burned out by cipro. Luckily it seemed to recover about a year later but I understand the more common ADR of tendon rupture etc. cam last longer :(

by avgDev 8y ago

atdrummond 8y ago

A fluoroquinolone by chance?

avgDev 8y ago
Yes, I am really surprised you were able to make that guess.
- Obi_Juan_Kenobi 8y ago
  The first google hit for "antibiotic nerve damage" is https://www.webmd.com/brain/news/20130826/fda-strengthens-fluoroquinolone-warning https://www.webmd.com/brain/news/20130826/fda-strengthens-fl... It is perhaps under-recognized, but it's not obscure. Looks like IVIG is the most promising treatment currently: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5833158/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5833158/
  - avgDev 8y ago
    Very interesting I have not heard of IVIG previously! I will bring this up with an MD. The biggest issues are doctors just very skeptical and often refuse to even look at studies. I have to walk a fine line between being educated and appearing like I'm self diagnosing.
    - cm2012 8y ago
      A good trick is to tell doctors your in-law (or something) is a doctor and recommended asking your regular doctor about treatment X. They're more likely than not to start considering that option seriously.
- xkcd-sucks 8y ago
  It's pretty easy if you've gotten got. For example, my sense of smell got burned out by cipro. Luckily it seemed to recover about a year later but I understand the more common ADR of tendon rupture etc. cam last longer :(