4 ms·

What does SE stand for? Software engineer? What kind of chronic pain do you have and why do you have it? How common is this?

avgDev 8y ago
Yes, software engineer. I have widespread tendon pain caused by a severe reaction to a popular antibiotic. I generally am pretty normal just get pain. Some medical professional label my symptoms as "fibromyalgia", however, this has been causing a lot of problems to finding the actual cause. Here is a link if you are interested on the subject: https://www.ema.europa.eu/en/medicines/human/referrals/quinolone-fluoroquinolone-containing-medicinal-products https://www.ema.europa.eu/en/medicines/human/referrals/quino... Currently, most doctors in the US are not aware of the issue and nobody wants to speak up. It has been an odd experience for me.
- atdrummond 8y ago
  A fluoroquinolone by chance?
  - avgDev 8y ago
    Yes, I am really surprised you were able to make that guess.
    - Obi_Juan_Kenobi 8y ago
      The first google hit for "antibiotic nerve damage" is https://www.webmd.com/brain/news/20130826/fda-strengthens-fluoroquinolone-warning https://www.webmd.com/brain/news/20130826/fda-strengthens-fl... It is perhaps under-recognized, but it's not obscure. Looks like IVIG is the most promising treatment currently: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5833158/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5833158/
      - avgDev 8y ago
        Very interesting I have not heard of IVIG previously! I will bring this up with an MD. The biggest issues are doctors just very skeptical and often refuse to even look at studies. I have to walk a fine line between being educated and appearing like I'm self diagnosing.
        cm2012 8y ago
        A good trick is to tell doctors your in-law (or something) is a doctor and recommended asking your regular doctor about treatment X. They're more likely than not to start considering that option seriously.
    - xkcd-sucks 8y ago
      It's pretty easy if you've gotten got. For example, my sense of smell got burned out by cipro. Luckily it seemed to recover about a year later but I understand the more common ADR of tendon rupture etc. cam last longer :(

avgDev 8y ago

Yes, software engineer. I have widespread tendon pain caused by a severe reaction to a popular antibiotic. I generally am pretty normal just get pain. Some medical professional label my symptoms as "fibromyalgia", however, this has been causing a lot of problems to finding the actual cause. Here is a link if you are interested on the subject: https://www.ema.europa.eu/en/medicines/human/referrals/quinolone-fluoroquinolone-containing-medicinal-products https://www.ema.europa.eu/en/medicines/human/referrals/quino... Currently, most doctors in the US are not aware of the issue and nobody wants to speak up. It has been an odd experience for me.

atdrummond 8y ago
A fluoroquinolone by chance?
- avgDev 8y ago
  Yes, I am really surprised you were able to make that guess.
  - Obi_Juan_Kenobi 8y ago
    The first google hit for "antibiotic nerve damage" is https://www.webmd.com/brain/news/20130826/fda-strengthens-fluoroquinolone-warning https://www.webmd.com/brain/news/20130826/fda-strengthens-fl... It is perhaps under-recognized, but it's not obscure. Looks like IVIG is the most promising treatment currently: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5833158/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5833158/
    - avgDev 8y ago
      Very interesting I have not heard of IVIG previously! I will bring this up with an MD. The biggest issues are doctors just very skeptical and often refuse to even look at studies. I have to walk a fine line between being educated and appearing like I'm self diagnosing.
      - cm2012 8y ago
        A good trick is to tell doctors your in-law (or something) is a doctor and recommended asking your regular doctor about treatment X. They're more likely than not to start considering that option seriously.
  - xkcd-sucks 8y ago
    It's pretty easy if you've gotten got. For example, my sense of smell got burned out by cipro. Luckily it seemed to recover about a year later but I understand the more common ADR of tendon rupture etc. cam last longer :(