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I have chronic pain fortunately I manage and can work full time as SE. However, I know others who could not transition from physical field into something else.
by avgDev 8y ago
I have chronic pain fortunately I manage and can work full time as SE. However, I know others who could not transition from physical field into something else.
Most people with disability genuinely want to work, but they usually get fired due to missing days or jobs that lack flexibility and cannot accommodate doctor visits for example.
Many are just as good if not better than healthy employees. I thought about creating some kind of non-profit to help connect disabled employees and employers(have not researched the market, not sure if that already exists). I think if people had clearly defined limits employers would be more likely to hire them. In western nations, with disability often comes feeling of not being worthy, as worth is often attached to work. Ability to work remote and flexible hours could really put many people back to work.
- MuffinFlavored 8y agoWhat does SE stand for? Software engineer? What kind of chronic pain do you have and why do you have it? How common is this?
- avgDev 8y agoYes, software engineer. I have widespread tendon pain caused by a severe reaction to a popular antibiotic. I generally am pretty normal just get pain. Some medical professional label my symptoms as "fibromyalgia", however, this has been causing a lot of problems to finding the actual cause. Here is a link if you are interested on the subject: https://www.ema.europa.eu/en/medicines/human/referrals/quinolone-fluoroquinolone-containing-medicinal-products https://www.ema.europa.eu/en/medicines/human/referrals/quino... Currently, most doctors in the US are not aware of the issue and nobody wants to speak up. It has been an odd experience for me.
- atdrummond 8y agoA fluoroquinolone by chance?
- avgDev 8y agoYes, I am really surprised you were able to make that guess.
- Obi_Juan_Kenobi 8y agoThe first google hit for "antibiotic nerve damage" is https://www.webmd.com/brain/news/20130826/fda-strengthens-fluoroquinolone-warning https://www.webmd.com/brain/news/20130826/fda-strengthens-fl... It is perhaps under-recognized, but it's not obscure. Looks like IVIG is the most promising treatment currently: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5833158/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5833158/
- avgDev 8y agoVery interesting I have not heard of IVIG previously! I will bring this up with an MD. The biggest issues are doctors just very skeptical and often refuse to even look at studies. I have to walk a fine line between being educated and appearing like I'm self diagnosing.
- cm2012 8y agoA good trick is to tell doctors your in-law (or something) is a doctor and recommended asking your regular doctor about treatment X. They're more likely than not to start considering that option seriously.
- xkcd-sucks 8y agoIt's pretty easy if you've gotten got. For example, my sense of smell got burned out by cipro. Luckily it seemed to recover about a year later but I understand the more common ADR of tendon rupture etc. cam last longer :(