3 ms·

For those concerned about privacy, it's buried on their How It Works page. I'd strongly suggest to the company that such info might be worth placing on the fron

For those concerned about privacy, it's buried on their How It Works page. I'd strongly suggest to the company that such info might be worth placing on the front page. According to the site, the Genetics Information Nondiscrimination Act covers the data provided and ensures you can't be discriminated against in employment or health insurance matters. Though I don't know anything about the GINA beyond the information they provide, this seems to leave out issues of end of life care (IE, can a family member use legal discovery mechanisms to get at info about potential up-coming medical problems in later life as a means to halt usage of a ventilator should you become comatose?) and probably some other things.

dotBen 16y ago
GINA could be repealed. It was legal for gay couples to marry once and now it isn't. (at state level here in CA, admittedly - but laws can be repealed at any level) Given that the health and the insurance industries have some of the most powerful lobby groups around, I'd be concerned that GINA isn't a guaranteed law for the rest of the life of this data. If I do this (I'm considering it) then I would do it as John Doe with my PO Box, freshly created email address, etc. Getting kinda OT but there is a similar chain of thought when you get STD/HIV testing that you should do it as a John Doe for similar reasons.