Hi, fellow here who also meets the ME/CFS criteria. These articles in which Sharpe and Weasley pop up are always very disturbing because they cry “ow, poor me,

Hi, fellow here who also meets the ME/CFS criteria. These articles in which Sharpe and Weasley pop up are always very disturbing because they cry “ow, poor me, the big mean activists are attacking science!!” And it’s surprisingly effective as seen in this thread. People assume they’re doing real science, and the activists are of the bad type. But in this case it’s Sharpe and is colleagues that aren’t doing real science, they’ve done an abortion of a study full of holes, and it’s been used to cause harm to very ill people. Causing denied disability, forced exercise (which is contraindicated for ME/CFS), and do on. Their study has been torn to shreds by other real scientists but they refused to accept it and they call this response activism. Sadly as we see here lay people even in tech are all too eager to lap up their claims. Prof. Bruce Levin at Columbia even started using Sharpes and co’s PACE trial as a teaching example of all the bad things you can do to make a wrong study. (His slides were online but I’m having trouble find them right now.) Another accessible article on the subject: https://www.statnews.com/2016/09/21/chronic-fatigue-syndrome-pace-trial/ https://www.statnews.com/2016/09/21/chronic-fatigue-syndrome... Edit: here is Sharpes colleague Wesseley comparing people who refuse their PACE trial to climate change deniers and antivaxxers. Its entirely them who are refusing the science though because it shows they got it very wrong. https://www.forbes.com/sites/julianvigo/2018/06/27/resistance-to-science-and-technology/ https://www.forbes.com/sites/julianvigo/2018/06/27/resistanc...