6 ms·
I have ulcerative colitis. Same type of disease. Basically there's no cure just management but it probably won't kill us with modern therapies. I basically blee
by homero 8y ago
I have ulcerative colitis. Same type of disease. Basically there's no cure just management but it probably won't kill us with modern therapies. I basically bleed out my colon and hope it stops with some steroids and biologics.
Smoking helped me more than tremendously. Nicotine replacement did nothing. Last year i quit smoking and fully vaped and had a deathly flare.
Smoking hurts chrons though. The pain is extreme and you don't get opiates because they constipate so just Tylenol. Nsaids are a big no no. I'm about to do another colonoscopy.
The worst part is urgency. During a flare I'll go to the bathroom to bleed every 30 minutes and when it's time to go i literally have 10 seconds to make it there otherwise it's an accident. Sleeping is hard.
So during a flare i have extreme pain, always in the bathroom, little sleep and blood loss.
- deleted 8y ago[deleted]
- SteveCoast 8y agoFWIW there are a fair number of people who report good results for this and the original post issues with keto, fasting and related things on Reddit. A bunch of claims around gluten too.
- acct1771 8y agoTo add to this: You're fighting inflammatory disease. Generally, do and consume things that lower it. Mental inflammation included.
- ams6110 8y agoYes, excess sugar/carbs can contribute to inflammation.
- shakna 8y agoI'm afraid I'm going to have to be a little rude here. You may be approaching this with good intentions, but don't do this. > Chronically ill people research their diseases ad nauseam. They try more treatments than they can count. In many cases, great scientific minds can’t crack a cause or cure. So unless someone asks for your advice, don’t offer it.
- SteveCoast 8y agoThe recent uproar about the NEJM issue containing only marketing is the counterpoint. Dr Fung pointed out that there's no wonder people turn to GOOP when the system is so broken. So while I understand and appreciate your point, I don't think you understand how corrupted medicine has become. It's now a necessity to do your own research. Dr Wahls curing of her own MS would be another example. Edit: here's the goop tweet: https://twitter.com/drjasonfung/status/1095550994430058496?s=09 https://twitter.com/drjasonfung/status/1095550994430058496?s...
- shakna 8y agoBy providing a suggestion, you're implying they haven't tried. I've spent ten years with a chronic disease with no known cause. I am currently on two trials. You are not capable of naming any suggestion that I have not heard, and that is common in the community. You don't appreciate my point - you're insulting by making your suggestions. You're suggesting that they haven't investigated something that affects every single part of their life.
- SteveCoast 8y agoI meet people all the time whose sole source of information is their doctor. And, I said 'FWIW' as the very first word. I realize this is the internet but that's a stretch to find an insult.
- shakna 8y ago> I realize this is the internet but that's a stretch to find an insult. It's not. It's even in the damned article. If you can't understand that, you have even less business giving anyone advice, you're missing the humanity of the situation.
- SteveCoast 8y agoYou literally give unasked advice in your other thread. I'm not sure we can run open discussion boards with the principle that you can't insult anyone for any reason even unintentionally.