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there's no way they'll give up after a single phone call. but the transplant team and the person potentially receiving the transplant only have one hour to resp

there's no way they'll give up after a single phone call. but the transplant team and the person potentially receiving the transplant only have one hour to respond to a notification of an available organ before UNOS moves on to the next person down the list. edit: mind you, this is not a straightforward yes/no - the transplant center needs to make sure that this particular organ donation will work at that particular time etc. - so there's a lot of factors involved. my stupidest (but i guess not entirely invalid) fear is that i'm listed as the primary contact for my dad in need of a kidney, and i basically can't go to any shows using yondr or any similar situation where i won't be near my phone for a while. or at least make sure that other people that will be contacted too know that i will not be available to pick up. edit: i guess i didn't answer the specific question though! at least the center where my dad is listed - they have a bunch of contact numbers for us and i have their numbers in my address book plus a request on my voicemail msg to call me twice to bypass DND if necessary. and my dad's renal case manager knows to text/email/call me too and her direct numbers are whitelisted in my phone, always. the 1 hour limit means we (the patient/family) will have less than 1 hour to respond. i also do believe that the center that gets the notification from UNOS also gets pinged if UNOS don't hear back at all whatsoever (like, a confirmation of the notification at minimum) within 10-15 minutes of the original notification. something like that. basically there's not really a situation where a single missed call will make or break it (unless literally someone is unreachable for the whole time.)

PopeDotNinja 8y ago
I'm gonna track down some people who can comment on how organ availability actually works. Who knows. Maybe there's a solution that could be wired up so you can go see a movie without worrying about whether or not a kidney suddenly becomes available.
- silencio 8y ago
  the solution is my watch is always on and buzzes for calls :) and the center has a lot of different people to contact that can contact each other. (we have a little geographic redundancy here.) but the reality of this is that, if you're on a transplant list, you basically won't be doing any significant/major travel or be unreachable for long periods of time. i will say though, this depends on the organ i imagine. i think 1 hour is standard across the board, but lists/priority and other things change dramatically depending on which organ you need - kidneys are viable for longer than hearts, etc. UNOS/OPTN is where you want to look for information on organ distribution - https://unos.org/transplantation/faqs/ https://unos.org/transplantation/faqs/ "How does the matching process work?" and https://optn.transplant.hrsa.gov/learn/about-transplantation/donor-matching-system/ https://optn.transplant.hrsa.gov/learn/about-transplantation...
  - lozenge 8y ago
    For hearts you only get one call and a few minutes to decide whether you are ready. If you don't pick up they go straight to the next person. My friend used a basic Nokia phone with a heart-wrenching message on it to prevent theft. (I'm not in the US)
    - solotronics 8y ago
      What the fuck? How incredibly distopian that your life can depend so heavily on cell phone coverage.
- C1sc0cat 8y ago
  Call the FCC had have the jammers ripped out
Johnny555 8y ago
Will they leave a message? If you use something like Google Voice as your number, their voicemail will be transcribed into a text message so you can call them back within minutes, or if they can't leave a call back number, you can at least be ready for them to call you back. By answering the phone, you're going to get even more spam calls since your number is identified as a live number. Or you could try the call screening like what Google offers on the Pixel (and there must be other phones/apps that can do the same). https://www.digitaltrends.com/mobile/google-call-screening-how-to-use/ https://www.digitaltrends.com/mobile/google-call-screening-h...
- silencio 8y ago
  I'm not the original transplant commenter if that was your intent :) I already know the numbers to expect calls from (and area codes, at minimum - which significantly narrows it down) and there's no way I'd waste my time answering anywhere from 2 to 10 spam calls a day for also being in a boat where we're years out at best. Definitely would let it go to voicemail - legit calls almost always do leave one or call back immediately - and a couple minutes usually won't be a dealbreaker.
brianpgordon 8y ago
> yondr This is the first time I've seen this and I'm appalled. What business is it of the performer whether you look at your phone? Who's paying whom? Also, wouldn't anybody trying to make an unauthorized recording just bring a decoy phone? And since we're talking about being reachable, what about that issue? If I'm on call for work and I find that I'm required to put my phone into one of those things, I'm going to be super pissed off, because I'm going to have to go home and figure out how to get a refund. How many people have actually died because someone who's suicidal or overdosing or something couldn't contact a particular loved one in one of these phone-free spaces? I guess this kind of thing could be cute as like a performance art thing but the company trying to push this for use at concerts and comedy shows is just cancer.

PopeDotNinja 8y ago

I'm gonna track down some people who can comment on how organ availability actually works. Who knows. Maybe there's a solution that could be wired up so you can go see a movie without worrying about whether or not a kidney suddenly becomes available.

silencio 8y ago
the solution is my watch is always on and buzzes for calls :) and the center has a lot of different people to contact that can contact each other. (we have a little geographic redundancy here.) but the reality of this is that, if you're on a transplant list, you basically won't be doing any significant/major travel or be unreachable for long periods of time. i will say though, this depends on the organ i imagine. i think 1 hour is standard across the board, but lists/priority and other things change dramatically depending on which organ you need - kidneys are viable for longer than hearts, etc. UNOS/OPTN is where you want to look for information on organ distribution - https://unos.org/transplantation/faqs/ https://unos.org/transplantation/faqs/ "How does the matching process work?" and https://optn.transplant.hrsa.gov/learn/about-transplantation/donor-matching-system/ https://optn.transplant.hrsa.gov/learn/about-transplantation...
- lozenge 8y ago
  For hearts you only get one call and a few minutes to decide whether you are ready. If you don't pick up they go straight to the next person. My friend used a basic Nokia phone with a heart-wrenching message on it to prevent theft. (I'm not in the US)
  - solotronics 8y ago
    What the fuck? How incredibly distopian that your life can depend so heavily on cell phone coverage.
C1sc0cat 8y ago
Call the FCC had have the jammers ripped out

Johnny555 8y ago

Will they leave a message? If you use something like Google Voice as your number, their voicemail will be transcribed into a text message so you can call them back within minutes, or if they can't leave a call back number, you can at least be ready for them to call you back. By answering the phone, you're going to get even more spam calls since your number is identified as a live number. Or you could try the call screening like what Google offers on the Pixel (and there must be other phones/apps that can do the same). https://www.digitaltrends.com/mobile/google-call-screening-how-to-use/ https://www.digitaltrends.com/mobile/google-call-screening-h...

silencio 8y ago
I'm not the original transplant commenter if that was your intent :) I already know the numbers to expect calls from (and area codes, at minimum - which significantly narrows it down) and there's no way I'd waste my time answering anywhere from 2 to 10 spam calls a day for also being in a boat where we're years out at best. Definitely would let it go to voicemail - legit calls almost always do leave one or call back immediately - and a couple minutes usually won't be a dealbreaker.

brianpgordon 8y ago

> yondr This is the first time I've seen this and I'm appalled. What business is it of the performer whether you look at your phone? Who's paying whom? Also, wouldn't anybody trying to make an unauthorized recording just bring a decoy phone? And since we're talking about being reachable, what about that issue? If I'm on call for work and I find that I'm required to put my phone into one of those things, I'm going to be super pissed off, because I'm going to have to go home and figure out how to get a refund. How many people have actually died because someone who's suicidal or overdosing or something couldn't contact a particular loved one in one of these phone-free spaces? I guess this kind of thing could be cute as like a performance art thing but the company trying to push this for use at concerts and comedy shows is just cancer.